{"ein":"261577154","name":"USHER SYNDROME SOCIETY INC","city":"NEEDHAM","state":"MA","ntee_code":null,"subsection_code":"03","form_type":"990","totals":{"paid_usd":1629160,"paid_count":23,"recipient_count":11,"approved_future_usd":0,"approved_future_count":0,"first_tax_year":2019,"last_tax_year":2025,"grant_rows":23},"years":[{"tax_year":2019,"amount_type":"paid","usd":100000,"count":4},{"tax_year":2020,"amount_type":"paid","usd":100000,"count":4},{"tax_year":2021,"amount_type":"paid","usd":40000,"count":4},{"tax_year":2022,"amount_type":"paid","usd":225000,"count":2},{"tax_year":2023,"amount_type":"paid","usd":284160,"count":3},{"tax_year":2024,"amount_type":"paid","usd":265000,"count":3},{"tax_year":2025,"amount_type":"paid","usd":615000,"count":3}],"top_recipients":[{"name":"CHILDREN'S HOSPITAL BOSTON TRUST","ein":"042774441","tier":"D","confidence":1,"city":"BOSTON","state":"MA","paid_usd":945000,"count":6,"last_tax_year":2025},{"name":"UNIVERSITY OF OREGON","ein":"521539724","tier":"B","confidence":0.92,"city":"EUGENE","state":"OR","paid_usd":339160,"count":3,"last_tax_year":2024},{"name":"University of Oregon","ein":"464727800","tier":"A","confidence":0.95,"city":"Eugene","state":"OR","paid_usd":100000,"count":1,"last_tax_year":2025},{"name":"MASSACHUSETTS EYE & EAR","ein":null,"tier":"U","confidence":null,"city":"BOSTON","state":"MA","paid_usd":60000,"count":1,"last_tax_year":2020},{"name":"MASSACHUSETTS EYE AND EAR DR ERIC PIERCE","ein":null,"tier":"U","confidence":null,"city":"BOSTON","state":"MA","paid_usd":60000,"count":1,"last_tax_year":2019},{"name":"USHER SYNDROME COALITION","ein":"261577154","tier":"D","confidence":0.5,"city":"MAYNARD","state":"MA","paid_usd":50000,"count":4,"last_tax_year":2023},{"name":"Usher Syndrome Coalition","ein":"264560897","tier":"A","confidence":1,"city":"Westford","state":"MA","paid_usd":35000,"count":2,"last_tax_year":2025},{"name":"MARGARET DYSON RESEARCH INSTITUTE CORNELL UNIVERSITY","ein":null,"tier":"U","confidence":null,"city":"NEW YORK","state":"NY","paid_usd":15000,"count":1,"last_tax_year":2019},{"name":"BOSTON CHILDREN'S TRUST","ein":null,"tier":"U","confidence":null,"city":"BOSTON","state":"MA","paid_usd":15000,"count":1,"last_tax_year":2019},{"name":"WEIL CORNELL MEDICINE OPTHALMOLOGY","ein":null,"tier":"U","confidence":null,"city":"NEW YORK","state":"NY","paid_usd":10000,"count":1,"last_tax_year":2020},{"name":"","ein":null,"tier":"U","confidence":null,"city":null,"state":null,"paid_usd":0,"count":2,"last_tax_year":2021}],"recent_grants":[{"grant_id":"243228624e858150c1a7dcdb11ed6d94","tax_year":2025,"amount_type":"paid","amount_usd":500000,"noncash_amount_usd":null,"recipient_name":"Childrens Hospital Boston","recipient_ein":"042774441","match_tier":"A","match_confidence":1,"match_method":"reported_ein_in_bmf","purpose":"Research Usher Syndrome","city":"Boston","state":"MA","recipient_type":"organization","object_id":"202620899349300012"},{"grant_id":"dc0ee225ab76e6d7f550fa0644605811","tax_year":2025,"amount_type":"paid","amount_usd":100000,"noncash_amount_usd":null,"recipient_name":"University of Oregon","recipient_ein":"464727800","match_tier":"A","match_confidence":0.95,"match_method":"reported_ein_not_in_bmf","purpose":"Research Usher Syndrome","city":"Eugene","state":"OR","recipient_type":"organization","object_id":"202620899349300012"},{"grant_id":"ff7a6d668175b875119174f0b5f3d21d","tax_year":2025,"amount_type":"paid","amount_usd":15000,"noncash_amount_usd":null,"recipient_name":"Usher Syndrome Coalition","recipient_ein":"264560897","match_tier":"A","match_confidence":1,"match_method":"reported_ein_in_bmf","purpose":"Research Usher Syndrome","city":"Westford","state":"MA","recipient_type":"organization","object_id":"202620899349300012"},{"grant_id":"3e3b4be77d1103ac43727708d6c5d19e","tax_year":2024,"amount_type":"paid","amount_usd":145000,"noncash_amount_usd":null,"recipient_name":"Childrens Hospital Boston","recipient_ein":"042774441","match_tier":"A","match_confidence":1,"match_method":"reported_ein_in_bmf","purpose":"Research Usher Syndrome","city":"Boston","state":"MA","recipient_type":"organization","object_id":"202521979349300512"},{"grant_id":"f8e1b9ce6d0c4726b8bb17d3cc5af76a","tax_year":2024,"amount_type":"paid","amount_usd":100000,"noncash_amount_usd":null,"recipient_name":"University of Oregon","recipient_ein":"521539724","match_tier":"B","match_confidence":0.92,"match_method":"name_zip5_state_exact","purpose":"Research Usher Syndrome","city":"Eugene","state":"OR","recipient_type":"organization","object_id":"202521979349300512"},{"grant_id":"5da747e5a0eba43246f788333051b5ca","tax_year":2024,"amount_type":"paid","amount_usd":20000,"noncash_amount_usd":null,"recipient_name":"Usher Syndrome Coalition","recipient_ein":"264560897","match_tier":"A","match_confidence":1,"match_method":"reported_ein_in_bmf","purpose":"Research Usher Syndrome","city":"Westford","state":"MA","recipient_type":"organization","object_id":"202521979349300512"},{"grant_id":"3c3daadcae33f2ef88f18082f9a48cd6","tax_year":2023,"amount_type":"paid","amount_usd":139160,"noncash_amount_usd":0,"recipient_name":"UNIVERSITY OF OREGON","recipient_ein":"521539724","match_tier":"B","match_confidence":0.92,"match_method":"name_zip5_state_exact","purpose":"RESEARCH USHER SYNDROME","city":"EUGENE","state":"OR","recipient_type":"organization","object_id":"202400449349302070"},{"grant_id":"e545271026003cc6c919cd974cb4e433","tax_year":2023,"amount_type":"paid","amount_usd":125000,"noncash_amount_usd":0,"recipient_name":"CHILDREN'S HOSPITAL BOSTON TRUST","recipient_ein":"042774441","match_tier":"D","match_confidence":0.54,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202400449349302070"},{"grant_id":"218ffe1f7613e0ae3977ce43c4f91185","tax_year":2023,"amount_type":"paid","amount_usd":20000,"noncash_amount_usd":0,"recipient_name":"USHER SYNDROME COALITION","recipient_ein":"261577154","match_tier":"D","match_confidence":0.5,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"MAYNARD","state":"MA","recipient_type":"organization","object_id":"202400449349302070"},{"grant_id":"66c6b09417ec66f14ee7bd13f4a0c3cc","tax_year":2022,"amount_type":"paid","amount_usd":125000,"noncash_amount_usd":0,"recipient_name":"CHILDREN'S HOSPITAL BOSTON TRUST","recipient_ein":"042774441","match_tier":"D","match_confidence":0.54,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202340469349303029"},{"grant_id":"9c1d97958436833a0e69971d9ef86d41","tax_year":2022,"amount_type":"paid","amount_usd":100000,"noncash_amount_usd":0,"recipient_name":"UNIVERSITY OF OREGON","recipient_ein":"521539724","match_tier":"B","match_confidence":0.92,"match_method":"name_zip5_state_exact","purpose":"RESEARCH USHER SYNDROME","city":"EUGENE","state":"OR","recipient_type":"organization","object_id":"202340469349303029"},{"grant_id":"9ffdc4983033a30e0bfaa4e60a18e571","tax_year":2021,"amount_type":"paid","amount_usd":30000,"noncash_amount_usd":null,"recipient_name":"CHILDREN'S HOSPITAL BOSTON TRUST","recipient_ein":"042774441","match_tier":"D","match_confidence":0.54,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202240529349300759"},{"grant_id":"c82cb2593e1dd19eab9bde15733ea3e3","tax_year":2021,"amount_type":"paid","amount_usd":10000,"noncash_amount_usd":null,"recipient_name":"USHER SYNDROME COALITION","recipient_ein":"261577154","match_tier":"D","match_confidence":0.5,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROME","city":"MAYNARD","state":"MA","recipient_type":"organization","object_id":"202240529349300759"},{"grant_id":"28481345a670c074eb70d09e82124b5e","tax_year":2021,"amount_type":"paid","amount_usd":0,"noncash_amount_usd":null,"recipient_name":"","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"no_candidates","purpose":"USHER SYNDROME RESEARCH","city":null,"state":null,"recipient_type":"unknown","object_id":"202240529349300759"},{"grant_id":"67cf8b7c909a1d0323e404d84f0308cf","tax_year":2021,"amount_type":"paid","amount_usd":0,"noncash_amount_usd":null,"recipient_name":"","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"no_candidates","purpose":"RESEARCH USHER SYNDROME","city":null,"state":null,"recipient_type":"unknown","object_id":"202240529349300759"},{"grant_id":"e0efa2c4ad0a0603708a17c740c026d9","tax_year":2020,"amount_type":"paid","amount_usd":60000,"noncash_amount_usd":null,"recipient_name":"MASSACHUSETTS EYE & EAR","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"ambiguous_50_candidates","purpose":"USHER SYNDROME RESEARCHRESEARCH USHER SYNDROME","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202120499349300827"},{"grant_id":"8853c6e62b0e713113736068166d10a9","tax_year":2020,"amount_type":"paid","amount_usd":20000,"noncash_amount_usd":null,"recipient_name":"CHILDREN'S HOSPITAL BOSTON TRUST","recipient_ein":"042774441","match_tier":"D","match_confidence":0.54,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202120499349300827"},{"grant_id":"647521f3ba3fd481262ba51c7918ba52","tax_year":2020,"amount_type":"paid","amount_usd":10000,"noncash_amount_usd":null,"recipient_name":"WEIL CORNELL MEDICINE OPTHALMOLOGY","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"no_candidates","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"NEW YORK","state":"NY","recipient_type":"organization","object_id":"202120499349300827"},{"grant_id":"8c979d65ef346ac35df7ab65b08ff979","tax_year":2020,"amount_type":"paid","amount_usd":10000,"noncash_amount_usd":null,"recipient_name":"USHER SYNDROME COALITION","recipient_ein":"261577154","match_tier":"D","match_confidence":0.5,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH","city":"MAYNARD","state":"MA","recipient_type":"organization","object_id":"202120499349300827"},{"grant_id":"b8c304c5826daa1bab04cc292481b541","tax_year":2019,"amount_type":"paid","amount_usd":60000,"noncash_amount_usd":null,"recipient_name":"MASSACHUSETTS EYE AND EAR DR ERIC PIERCE","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"no_candidates","purpose":"RESEARCH USHER SYND.","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202030599349300718"},{"grant_id":"98455a85809c8c2a8bdef89ad0769cfc","tax_year":2019,"amount_type":"paid","amount_usd":15000,"noncash_amount_usd":null,"recipient_name":"MARGARET DYSON RESEARCH INSTITUTE CORNELL UNIVERSITY","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"no_candidates","purpose":"RESEARCH USHER SYND.","city":"NEW YORK","state":"NY","recipient_type":"organization","object_id":"202030599349300718"},{"grant_id":"9fe5859aef2186730102cbe43f1503ee","tax_year":2019,"amount_type":"paid","amount_usd":15000,"noncash_amount_usd":null,"recipient_name":"BOSTON CHILDREN'S TRUST","recipient_ein":null,"match_tier":"U","match_confidence":null,"match_method":"probable_not_unique","purpose":"RESEARCH USHER SYND.","city":"BOSTON","state":"MA","recipient_type":"organization","object_id":"202030599349300718"},{"grant_id":"77a1455bfb57416bcf772f712ccb2a3f","tax_year":2019,"amount_type":"paid","amount_usd":10000,"noncash_amount_usd":null,"recipient_name":"USHER SYNDROME COALITION","recipient_ein":"261577154","match_tier":"D","match_confidence":0.5,"match_method":"name_jw_state","purpose":"RESEARCH USHER SYN.","city":"MAYNARD","state":"MA","recipient_type":"organization","object_id":"202030599349300718"}],"filings":[{"object_id":"202620899349300012","tax_period_end":"2025-12-31","filing_submission_date":null,"return_version":"2025v4.0","filing_year":2026,"tax_year":2025,"form_type":"990"},{"object_id":"202521979349300512","tax_period_end":"2024-12-31","filing_submission_date":null,"return_version":"2024v5.1","filing_year":2025,"tax_year":2024,"form_type":"990"},{"object_id":"202400449349302070","tax_period_end":"2023-12-31","filing_submission_date":null,"return_version":"2023v4.0","filing_year":2024,"tax_year":2023,"form_type":"990"},{"object_id":"202340469349303029","tax_period_end":"2022-12-31","filing_submission_date":null,"return_version":"2022v4.1","filing_year":2023,"tax_year":2022,"form_type":"990"},{"object_id":"202240529349300759","tax_period_end":"2021-12-31","filing_submission_date":null,"return_version":"2021v4.1","filing_year":2022,"tax_year":2021,"form_type":"990"},{"object_id":"202120499349300827","tax_period_end":"2020-12-31","filing_submission_date":null,"return_version":"2020v4.0","filing_year":2021,"tax_year":2020,"form_type":"990"},{"object_id":"202030599349300718","tax_period_end":"2019-12-31","filing_submission_date":null,"return_version":"2019v5.0","filing_year":2020,"tax_year":2019,"form_type":"990"}],"chunked":false,"dataset_version":"2026.09.0","built_at":"2026-09-03T21:13:09+00:00"}