Grants paid by Myotonic Dystrophy Foundation Inc
EIN 20-5014628 · Oakland, CA · Form 990, Schedule I · NTEE G40
Myotonic Dystrophy Foundation Inc of Oakland, CA (EIN 20-5014628) reported 37 grants paid totaling $3,810,604 to 23 recipients in tax years 2018–2024, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$3,810,604
37 grants
Recipients
23
distinct organizations
Tax years
2018–2024
7 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 3 | $369,270 | — |
| 2019 | 3 | $167,840 | — |
| 2020 | 3 | $117,400 | — |
| 2021 | 6 | $563,494 | — |
| 2022 | 6 | $1,045,000 | — |
| 2023 | 7 | $700,000 | — |
| 2024 | 9 | $847,600 | — |
Top recipients
The 23 recipients receiving the most from Myotonic Dystrophy Foundation Inc, by grants paid, out of 23 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Univeristy of Rochester 16-0743209 | A | Rochester, NY | 3 | $467,840 | 2023 |
| Unversity at Albany 16-1514621 | A | Albany, NY | 2 | $350,000 | 2022 |
| University of Florida 59-0974739 | A | Gainesville, FL | 3 | $298,494 | 2023 |
| Virginia Commonwealth Univers 54-6001758 | A | Richmond, VA | 4 | $295,000 | 2024 |
| University of Florida 59-6002052 | A | Gainesville, FL | 3 | $222,500 | 2024 |
| The Jackson Laboratory 01-0211513 | A | Bar Harbor, ME | 1 | $199,270 | 2018 |
| University of Nevada 88-6000024 | A | Las Vegas, NV | 2 | $195,000 | 2024 |
| Stanford School of Medicine 94-1156365 | A | Stanford, CA | 1 | $190,000 | 2023 |
| Sapienza University of Rome | U | Rome | 1 | $190,000 | 2022 |
| University of Utah 87-6000525 | A | Salt Lake City, UT | 1 | $190,000 | 2024 |
| Baylor College of Medicine 74-1613878 | A | Houston, TX | 2 | $160,000 | 2021 |
| Scripps Research Institute 33-0435954 | A | La Jolla, CA | 2 | $157,500 | 2019 |
| Massachusetts General Hosp 04-1564655 | A | Boston, MA | 2 | $155,000 | 2024 |
| Unversity of Albany 14-1368361 | A | Albany, NY | 1 | $105,000 | 2024 |
| Universite de Montreal | U | Montreal, QUEBEC | 1 | $105,000 | 2022 |
| Grimn | U | Jonquiere, QC | 1 | $105,000 | 2022 |
| University of Illinois 37-6000511 | A | Urbana, IL | 1 | $105,000 | 2024 |
| Emory University 58-0566256 | A | Atlanta, GA | 1 | $55,000 | 2023 |
| University of Ca San Diego 95-6006144 | A | La Jolla, CA | 1 | $55,000 | 2020 |
| University of Nottingham | U | Nottingham | 1 | $55,000 | 2021 |
| Wake Forest University 22-3849199 | A | Winstonsalem, NC | 1 | $55,000 | 2024 |
| University of Missouri 43-6003859 | A | Columbia, MO | 1 | $50,000 | 2023 |
| University of Washington 91-6001537 | A | Seattle, WA | 1 | $50,000 | 2024 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 37 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2024 | University of Utah Salt Lake City, UT | A | $190,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | University of Nevada Las Vegas, NV | A | $145,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | University of Illinois Urbana, IL | A | $105,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | University of Florida Gainesville, FL | A | $105,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | Unversity of Albany Albany, NY | A | $105,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | Wake Forest University Winstonsalem, NC | A | $55,000 | paid | 202533089349303183 | |
| 2024 | Massachusetts General Boston, MA | A | $50,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | University of Washington Seattle, WA | A | $50,000 | paid | RESEARCH | 202533089349303183 |
| 2024 | Virginia Commonwealth Univers Richmond, VA | A | $42,600 | paid | RESEARCH | 202533089349303183 |
| 2023 | Univeristy of Rochester Rochester, NY | A | $245,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | Stanford School of Medicine Stanford, CA | A | $190,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | Emory University Atlanta, GA | A | $55,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | Virginia Commonwealth Univers Richmond, VA | A | $55,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | University of Florida Gainesville, FL | A | $55,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | University of Missouri Columbia, MO | A | $50,000 | paid | RESEARCH | 202403199349315440 |
| 2023 | University of Nevada Las Vegas, NV | A | $50,000 | paid | RESEARCH | 202403199349315440 |
| 2022 | Unversity at Albany Albany, NY | A | $295,000 | paid | RESEARCH | 202343199349327279 |
| 2022 | Virginia Commonwealth Univers Richmond, VA | A | $190,000 | paid | RESEARCH | 202343199349327279 |
| 2022 | Sapienza University of Rome Rome | U | $190,000 | paid | RESEARCH | 202343199349327279 |
| 2022 | University of Florida Gainesville, FL | A | $160,000 | paid | RESEARCH | 202343199349327279 |
| 2022 | Universite de Montreal Montreal, QUEBEC | U | $105,000 | paid | RESEARCH | 202343199349327279 |
| 2022 | Grimn Jonquiere, QC | U | $105,000 | paid | RESEARCH | 202343199349327279 |
| 2021 | Univeristy of Rochester Rochester, NY | A | $160,000 | paid | RESEARCH | 202202599349300535 |
| 2021 | Massachusetts General Hosp Boston, MA | A | $105,000 | paid | RESEARCH | 202202599349300535 |
| 2021 | Baylor College of Medicine Houston, TX | A | $105,000 | paid | RESEARCH FELLOWSHIP | 202202599349300535 |
| 2021 | University of Florida Gainesville, FL | A | $83,494 | paid | RESEARCH | 202202599349300535 |
| 2021 | Unversity at Albany Albany, NY | A | $55,000 | paid | RESEARCH | 202202599349300535 |
| 2021 | University of Nottingham Nottingham | U | $55,000 | paid | RESEARCH | 202202599349300535 |
| 2020 | Baylor College of Medicine Houston, TX | A | $55,000 | paid | RESEARCH FELLOWSHIP | 202112149349301601 |
| 2020 | University of Ca San Diego La Jolla, CA | A | $55,000 | paid | RESEARCH FELLOWSHIP | 202112149349301601 |
| 2020 | Virginia Commonwealth Univers Richmond, VA | A | $7,400 | paid | RESEARCH | 202112149349301601 |
| 2019 | University of Rochester Rochester, NY | A | $62,840 | paid | DM RESEARCH | 202041849349300129 |
| 2019 | University of Florida Gainesville, FL | A | $52,500 | paid | RESEARCH FELLOWSHIP | 202041849349300129 |
| 2019 | Scripps Research Institute Jupiter, FL | A | $52,500 | paid | RESEARCH FELLOWSHIP | 202041849349300129 |
| 2018 | The Jackson Laboratory Bar Harbor, ME | A | $199,270 | paid | RESEARCH GRANT | 201902639349300140 |
| 2018 | Scripps Research Institute La Jolla, CA | A | $105,000 | paid | RESEARCH GRANT | 201902639349300140 |
| 2018 | University of Florida Gainesville, FL | A | $65,000 | paid | RESEARCH/ MEDICAL EDUCATION | 201902639349300140 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.2 | 202533089349303183 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v5.1 | 202403199349315440 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202343199349327279 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.0 | 202202599349300535 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.0 | 202112149349301601 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.0 | 202041849349300129 |
| 990 | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201902639349300140 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/205014628.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.