Grants paid by Rett Syndrome Research Trust Inc
EIN 26-0687439 · Trumbull, CT · Form 990, Schedule I · NTEE E12
Rett Syndrome Research Trust Inc of Trumbull, CT (EIN 26-0687439) reported 155 grants paid totaling $45,503,388 to 90 recipients in tax years 2018–2025, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$45,503,388
155 grants
Recipients
90
distinct organizations
Tax years
2018–2025
8 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 18 | $7,166,943 | — |
| 2019 | 18 | $6,719,945 | — |
| 2020 | 24 | $4,205,466 | — |
| 2021 | 24 | $4,584,810 | — |
| 2022 | 22 | $3,658,593 | — |
| 2023 | 16 | $9,871,592 | — |
| 2024 | 16 | $3,885,311 | — |
| 2025 | 17 | $5,410,728 | — |
Top recipients
The 90 recipients receiving the most from Rett Syndrome Research Trust Inc, by grants paid, out of 90 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Massachusetts Institute of Technology 04-2103594 | A | Cambridge, MA | 5 | $5,786,738 | 2023 |
| University of Massashussets Medical School 54-2084125 | A | Worcester, MA | 7 | $5,289,935 | 2023 |
| Gene Therapy Consortium | U | 2 | $3,280,914 | 2019 | |
| Ombd Consortium | U | 2 | $1,947,801 | 2019 | |
| University of California Davispeter Beal 95-6006144 | A | Davis, CA | 6 | $1,545,055 | 2023 |
| Emory University | U | Atlanta, GA | 2 | $1,538,030 | 2023 |
| MIT | U | Trumbull, CT | 1 | $1,244,914 | 2024 |
| Proqr | U | Trumbull, CT | 1 | $1,120,000 | 2023 |
| Pre-Clinical Studies | U | Trumbull, CT | 1 | $1,100,000 | 2025 |
| Clinical Trial Consortium | U | 2 | $1,061,829 | 2019 | |
| Profluent | U | Trumbull, CT | 1 | $1,000,000 | 2025 |
| Mecp2 Consortium | U | 2 | $966,713 | 2019 | |
| University of Massachusetts | U | Trumbull, CT | 2 | $865,823 | 2025 |
| Harvard University 04-2103580 | A | Boston, MA | 2 | $769,813 | 2019 |
| Gene Therapy Consortium | U | Trumbull, CT | 1 | $765,607 | 2020 |
| Baylor College of Medicine 74-1613878 | A | Houston, TX | 4 | $751,759 | 2022 |
| Viralgen | U | Trumbull, CT | 1 | $750,000 | 2025 |
| Oregon Health and Sciences University Foundation 23-7083114 | A | Portland, OR | 5 | $725,423 | 2022 |
| University of California Davis | U | Trumbull, CT | 2 | $718,296 | 2025 |
| Beam Therapeutics 81-5238376 | A | Cambridge, MA | 1 | $639,300 | 2021 |
| California Institute of Technologies 95-1643307 | A | Pasadena, CA | 3 | $601,197 | 2023 |
| Jackson Labs | U | Trumbull, CT | 2 | $585,438 | 2025 |
| Q-State Biosciences Inc 46-2469775 | A | Cambridge, MA | 1 | $553,967 | 2018 |
| Whitehead Institute of Biomedical Research 06-1043412 | A | Cambridge, MA | 3 | $524,888 | 2020 |
| Clinical Trial Consortium | U | Trumbull, CT | 2 | $524,780 | 2021 |
| Emory University | U | Trumbull, CT | 2 | $493,816 | 2024 |
| Rett Syndrome Global Registry Co Rsrt | U | Trumbull, CT | 2 | $483,228 | 2023 |
| Mecp2 Consortium | U | Trumbull, CT | 1 | $450,000 | 2020 |
| Beam Therapeutics | U | Cambridge, MA | 1 | $426,200 | 2020 |
| Coriell Institute for Medical Research 21-0672684 | B | Camden, NJ | 4 | $413,899 | 2023 |
| Jackson Laboratories 01-0211513 | C | Bar Harbor, ME | 5 | $407,294 | 2022 |
| University of Pennsylvania | U | Trumbull, CT | 1 | $380,686 | 2021 |
| Case Western Reserve University 34-1018992 | A | Cleveland, OH | 2 | $364,124 | 2019 |
| 4basebio | U | Trumbull, CT | 1 | $350,000 | 2025 |
| Fred Hutchinson Cancer Research Center 23-7156071 | A | Seattle, WA | 2 | $343,465 | 2019 |
| Ketamine Trial | U | Trumbull, CT | 3 | $330,427 | 2022 |
| Shape Therapeutics | U | Trumbull, CT | 1 | $300,000 | 2025 |
| Rett Syndrome Biorepository | U | Trumbull, CT | 2 | $286,935 | 2025 |
| Hospital for Sick Children | U | Trumbull, CT | 2 | $285,000 | 2021 |
| Ombd Consortium | U | Trumbull, CT | 1 | $278,174 | 2020 |
| California Institute of Technologies | U | Trumbull, CT | 1 | $250,000 | 2024 |
| Evox | U | Trumbull, CT | 1 | $240,000 | 2025 |
| Ciitizen Corporation | U | Palo Alto, CA | 2 | $226,885 | 2021 |
| Rett Syndrome Global Registry | U | Trumbull, CT | 2 | $214,086 | 2025 |
| Duke | U | Trumbull, CT | 1 | $213,610 | 2025 |
| Rett Syndrome Center at Montefiore Medical Center 13-1740114 | A | Bronx, NY | 4 | $200,000 | 2021 |
| Columbia University 82-2244803 | C | New York, NY | 1 | $193,149 | 2022 |
| Baylor College of Medicine | U | Trumbull, CT | 1 | $189,576 | 2021 |
| University of California Berkley | U | Berkeley, CA | 1 | $186,074 | 2020 |
| Fred Hutchinson Cancer Research 91-1935159 | C | Seatle, WA | 1 | $182,485 | 2022 |
| University of Rochester 16-0743209 | A | Rochester, NY | 1 | $181,404 | 2018 |
| Dsg | U | Trumbull, CT | 1 | $180,263 | 2021 |
| Emerald Innovations | U | Cambridge, MA | 3 | $158,208 | 2022 |
| Yale University 06-0646973 | A | New Haven, CT | 1 | $157,972 | 2019 |
| Nationwide Children's Hospital 31-1036372 | A | Columbus, OH | 2 | $152,489 | 2019 |
| Boston Children's Hospital | U | Boston, MA | 2 | $136,433 | 2023 |
| Fred Hutchinson Cancer Research | U | Trumbull, CT | 1 | $134,895 | 2021 |
| Uc Davis | U | Trumbull, CT | 1 | $131,293 | 2021 |
| Resplice | U | Trumbull, CT | 1 | $130,000 | 2025 |
| Texas Childrens Hospital 74-1100555 | B | Houston, TX | 1 | $125,000 | 2022 |
| Other | U | 1 | $112,653 | 2019 | |
| Harvard STEM Cell Institute | U | Cambridge, MA | 2 | $112,614 | 2023 |
| Emerald Innovations | U | Trumbull, CT | 1 | $107,145 | 2024 |
| Yale University | U | Trumbull, CT | 1 | $97,328 | 2024 |
| Columbia University 13-6105775 | D | Trumbull, CT | 1 | $96,578 | 2024 |
| Boston Childrens Hospital | U | Trumbull, CT | 1 | $90,152 | 2024 |
| Duke University School of Medicine | U | Trumbull, CT | 1 | $87,519 | 2021 |
| New York University | U | Trumbull, CT | 2 | $80,234 | 2024 |
| University of North Carolina 56-6001393 | A | Chapel Hill, NC | 1 | $74,487 | 2018 |
| University of Edinburgh | U | Trumbull, CT | 1 | $70,076 | 2020 |
| Children's Hospital of Montefiore 06-1007562 | D | Trumbull, CT | 2 | $65,123 | 2025 |
| Children's Hospital of Philadelphia 23-1352166 | B | Philadelphia, PA | 1 | $62,587 | 2022 |
| Ombd Co Rsrt | U | Trumbull, CT | 1 | $60,000 | 2022 |
| Improving Delivery Platform | U | 1 | $59,000 | 2019 | |
| Queen Mary Iniversity of London | U | Trumbull, CT | 1 | $58,504 | 2020 |
| Children's Hospital of Montefiore | U | Bronx, NY | 1 | $50,000 | 2023 |
| Senti Bio | U | Trumbull, CT | 1 | $50,000 | 2025 |
| Harvard University | U | Boston, MA | 1 | $50,000 | 2022 |
| Fred Hutchinson Cancer Center | U | Trumbull, CT | 1 | $46,755 | 2024 |
| Dsg | U | Malvern, PA | 1 | $42,000 | 2020 |
| University of Rochester | U | Rochester, NY | 1 | $36,690 | 2022 |
| Harvard STEM Cell Institute | U | Trumbull, CT | 1 | $36,343 | 2021 |
| Couragene | U | Trumbull, CT | 2 | $30,000 | 2025 |
| Sampled | U | Trumbull, CT | 1 | $24,100 | 2023 |
| Emerald 1 - Vivosense | U | Trumbull, CT | 1 | $20,075 | 2023 |
| Autism Science Foundation 26-4522309 | A | New York, NY | 1 | $17,500 | 2018 |
| Vivalink | U | Trumbull, CT | 2 | $16,187 | 2025 |
| Washington State University 91-6001108 | A | Pullman, WA | 1 | $10,000 | 2018 |
| Charles River 51-0188208 | C | Wilmington, MA | 1 | $3,698 | 2020 |
| Genetic Alliance | U | Trumbull, CT | 1 | $750 | 2023 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 155 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2025 | Pre-Clinical Studies Trumbull, CT | U | $1,100,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Profluent Trumbull, CT | U | $1,000,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Viralgen Trumbull, CT | U | $750,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | University of California Davis Trumbull, CT | U | $474,894 | paid | RNA EDITING | 202601359349311400 |
| 2025 | Jackson Labs Trumbull, CT | U | $419,317 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | 4basebio Trumbull, CT | U | $350,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Shape Therapeutics Trumbull, CT | U | $300,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Evox Trumbull, CT | U | $240,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Duke Trumbull, CT | U | $213,610 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Resplice Trumbull, CT | U | $130,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Rett Syndrome Biorepository Trumbull, CT | U | $123,762 | paid | RNA EDITING | 202601359349311400 |
| 2025 | Rett Syndrome Global Registry Trumbull, CT | U | $110,490 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | University of Massachusetts Trumbull, CT | U | $84,791 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Senti Bio Trumbull, CT | U | $50,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Children's Hospital of Montefiore Trumbull, CT | D | $40,123 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Couragene Trumbull, CT | U | $15,000 | paid | RETT RESEARCH | 202601359349311400 |
| 2025 | Vivalink Trumbull, CT | U | $8,741 | paid | RETT RESEARCH | 202601359349311400 |
| 2024 | MIT Trumbull, CT | U | $1,244,914 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | University of Massachusetts Trumbull, CT | U | $781,032 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Emory University Trumbull, CT | U | $424,881 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | California Institute of Technologies Trumbull, CT | U | $250,000 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | University of California Davis Trumbull, CT | U | $243,402 | paid | RNA EDITING | 202541969349300024 |
| 2024 | Jackson Labs Trumbull, CT | U | $166,121 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Rett Syndrome Biorepository Trumbull, CT | U | $163,173 | paid | RNA EDITING | 202541969349300024 |
| 2024 | Emerald Innovations Trumbull, CT | U | $107,145 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Rett Syndrome Global Registry Trumbull, CT | U | $103,596 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Yale University Trumbull, CT | U | $97,328 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Columbia University Trumbull, CT | D | $96,578 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Boston Childrens Hospital Trumbull, CT | U | $90,152 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Fred Hutchinson Cancer Center Trumbull, CT | U | $46,755 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | New York University Trumbull, CT | U | $30,234 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Children's Hospital of Montefiore Trumbull, CT | D | $25,000 | paid | RETT RESEARCH | 202541969349300024 |
| 2024 | Couragene Trumbull, CT | U | $15,000 | paid | RETT RESEARCH | 202541969349300024 |
| 2023 | Massachusetts Institute of Technology Cambridge, MA | A | $3,734,738 | paid | RNA EDITING | 202431849349300208 |
| 2023 | University of Massachusetts Medical School Worcester, MA | A | $2,343,091 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Emory University Atlanta, GA | U | $1,254,085 | paid | RNA EDITING | 202431849349300208 |
| 2023 | Proqr Trumbull, CT | U | $1,120,000 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | California Institute of Technologies Pasadena, CA | C | $500,000 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | University of California Davis Davis, CA | A | $390,506 | paid | RNA EDITING | 202431849349300208 |
| 2023 | Coriell Institute for Medical Research Camden, NJ | B | $105,826 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Harvard STEM Cell Institute Cambridge, MA | U | $101,887 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Rett Syndrome Global Registry Co Rsrt Trumbull, CT | U | $100,000 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Boston Children's Hospital Boston, MA | U | $69,088 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | New York University Trumbull, CT | U | $50,000 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Children's Hospital of Montefiore Bronx, NY | U | $50,000 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Sampled Trumbull, CT | U | $24,100 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Emerald 1 - Vivosense Trumbull, CT | U | $20,075 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Vivalink Trumbull, CT | U | $7,446 | paid | RETT RESEARCH | 202431849349300208 |
| 2023 | Genetic Alliance Trumbull, CT | U | $750 | paid | RETT RESEARCH | 202431849349300208 |
| 2022 | University of Massachusetts Medical School Worcester, MA | A | $607,197 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Rett Syndrome Global Registry Co Rsrt Trumbull, CT | U | $383,228 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | University of California Davis Davis, CA | A | $360,624 | paid | RNA EDITING | 202341319349301974 |
| 2022 | Massachusetts Institute of Technology Cambridge, MA | A | $306,168 | paid | RNA EDITING | 202341319349301974 |
| 2022 | Emory University Atlanta, GA | U | $283,945 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Ketamine Trial Trumbull, CT | U | $230,217 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Columbia University New York, NY | C | $193,149 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Baylor College of Medicine Houston, TX | B | $192,169 | paid | MECP2 CONSORTIUM | 202341319349301974 |
| 2022 | Fred Hutchinson Cancer Research Seatle, WA | C | $182,485 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Jackson Laboratories Bar Harbor, ME | C | $132,479 | paid | MOUSE MODELS ALLELIC SERIES | 202341319349301974 |
| 2022 | Texas Childrens Hospital Houston, TX | B | $125,000 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Coriell Institute for Medical Research Camden, NJ | B | $119,461 | paid | BIO REPOSITORY | 202341319349301974 |
| 2022 | Emerald Innovations Cambridge, MA | U | $103,595 | paid | OUTCOME MEASURES | 202341319349301974 |
| 2022 | Jackson Laboratories Bar Harbor, ME | C | $68,060 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Boston Children's Hospital Boston, MA | U | $67,345 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Children's Hospital of Philadelphia Philadelphia, PA | B | $62,587 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Ombd Co Rsrt Trumbull, CT | U | $60,000 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | University of Massachusetts Medical School Worcester, MA | A | $54,717 | paid | RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME | 202341319349301974 |
| 2022 | Harvard University Boston, MA | U | $50,000 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | University of Rochester Rochester, NY | U | $36,690 | paid | RETT RESEARCH | 202341319349301974 |
| 2022 | Oregon Health and Sciences University Foundation Portland, OR | A | $28,750 | paid | RNA EDITING | 202341319349301974 |
| 2022 | Harvard STEM Cell Institute Cambridge, MA | U | $10,727 | paid | RETT RESEARCH | 202341319349301974 |
| 2021 | University of Massashussets Medical School Worcester, MA | A | $641,740 | paid | RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME | 202211369349300611 |
| 2021 | Beam Therapeutics Cambridge, MA | A | $639,300 | paid | DNA EDITING | 202211369349300611 |
| 2021 | Massachusetts Institute of Technology Cambridge, MA | A | $612,334 | paid | RNA EDITING | 202211369349300611 |
| 2021 | University of Pennsylvania Trumbull, CT | U | $380,686 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | University of Massashussets Medical School Worcester, MA | A | $218,311 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Hospital for Sick Children Trumbull, CT | U | $190,000 | paid | GENOME EDITING FOR MECP2 DUPLICATION SYNDROME | 202211369349300611 |
| 2021 | Baylor College of Medicine Trumbull, CT | U | $189,576 | paid | MECP2 CONSORTIUM | 202211369349300611 |
| 2021 | Dsg Trumbull, CT | U | $180,263 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Ciitizen Corporation Palo Alto, CA | U | $178,000 | paid | DIGITAL NATIONAL REGISTRY | 202211369349300611 |
| 2021 | University of California Davispeter Beal Davis, CA | A | $174,200 | paid | RNA EDITING | 202211369349300611 |
| 2021 | Coriell Institute for Medical Research Camden, NJ | B | $150,836 | paid | BIO REPOSITORY | 202211369349300611 |
| 2021 | Fred Hutchinson Cancer Research Trumbull, CT | U | $134,895 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Uc Davis Trumbull, CT | U | $131,293 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Oregon Health and Sciences University Foundation Portland, OR | A | $115,000 | paid | RNA EDITING | 202211369349300611 |
| 2021 | Jackson Laboratories Bar Harbor, ME | C | $106,959 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Clinical Trial Consortium Trumbull, CT | U | $106,202 | paid | CLINICAL TRIAL CONSORTIUM | 202211369349300611 |
| 2021 | Jackson Laboratories Bar Harbor, ME | C | $88,296 | paid | MOUSE MODELS ALLELIC SERIES | 202211369349300611 |
| 2021 | Duke University School of Medicine Trumbull, CT | U | $87,519 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Emory University Trumbull, CT | U | $68,935 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | California Institute of Technologies Pasadena, CA | A | $53,898 | paid | MEPC2 REGULATION | 202211369349300611 |
| 2021 | Ketamine Trial Trumbull, CT | U | $53,780 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Harvard STEM Cell Institute Trumbull, CT | U | $36,343 | paid | RETT RESEARCH | 202211369349300611 |
| 2021 | Rett Syndrome Center at Montefiore Medical Center Bronx, NY | A | $25,000 | paid | RETT CLINIC | 202211369349300611 |
| 2021 | Emerald Innovations Cambridge, MA | U | $21,444 | paid | OUTCOME MEASURES | 202211369349300611 |
| 2020 | Gene Therapy Consortium Trumbull, CT | U | $765,607 | paid | GENE THERAPY CONSORTIUM | 202131379349300313 |
| 2020 | University of Massashussets Medical School Worcester, MA | A | $533,759 | paid | RNA/DNA EDITING;READTHROUGH THERAPY; MECP2 DUPLICATION SYNDROME | 202131379349300313 |
| 2020 | Mecp2 Consortium Trumbull, CT | U | $450,000 | paid | MECP2 CONSORTIUM | 202131379349300313 |
| 2020 | Beam Therapeutics Cambridge, MA | U | $426,200 | paid | DNA EDITING | 202131379349300313 |
| 2020 | Clinical Trial Consortium Trumbull, CT | U | $418,578 | paid | CLINICAL TRIAL CONSORTIUM | 202131379349300313 |
| 2020 | Massachusetts Institute of Technology Cambridge, MA | A | $356,166 | paid | RNA EDITING | 202131379349300313 |
| 2020 | Ombd Consortium Trumbull, CT | U | $278,174 | paid | OMBD CONSORTIUM | 202131379349300313 |
| 2020 | University of California Berkley Berkeley, CA | U | $186,074 | paid | PROTEIN REPLACEMENT | 202131379349300313 |
| 2020 | Hospital for Sick Children Trumbull, CT | U | $95,000 | paid | GENOME EDITING FOR MECP2 DUPLICATION SYNDROME | 202131379349300313 |
| 2020 | Baylor College of Medicine Houston, TX | A | $93,497 | paid | PRECLINICAL DRUG DEVELOPMENT-MECP2 DUPLICATION SYNDROME | 202131379349300313 |
| 2020 | University of California Davis Davis, CA | A | $70,586 | paid | RNA EDITING | 202131379349300313 |
| 2020 | University of Edinburgh Trumbull, CT | U | $70,076 | paid | GENE REPLACEMENT; RNA TRANSPLICING | 202131379349300313 |
| 2020 | Queen Mary Iniversity of London Trumbull, CT | U | $58,504 | paid | MECP2 REACTIVATION | 202131379349300313 |
| 2020 | Oregon Health and Sciences University Foundation Portland, OR | A | $57,500 | paid | RNA EDITING | 202131379349300313 |
| 2020 | Whitehead Institute of Biomedical Research Cambridge, MA | A | $49,988 | paid | MECP2 REACTIVATION | 202131379349300313 |
| 2020 | Ciitizen Corporation Palo Alto, CA | U | $48,885 | paid | DIGITAL NATIONAL REGISTRY | 202131379349300313 |
| 2020 | California Institute of Technologies Pasadena, CA | C | $47,299 | paid | MEPC2 REGULATION | 202131379349300313 |
| 2020 | Ketamine Trial Trumbull, CT | U | $46,430 | paid | PRE-CLINICAL TESTING OF KETAMINE COMPOUNDS | 202131379349300313 |
| 2020 | Dsg Malvern, PA | U | $42,000 | paid | RETT SYNDROME GLOBAL REGISTRY | 202131379349300313 |
| 2020 | Coriell Institute for Medical Research Camden, NJ | B | $37,776 | paid | BIO REPOSITORY | 202131379349300313 |
| 2020 | Emerald Innovations Cambridge, MA | U | $33,169 | paid | OUTCOME MEASURES | 202131379349300313 |
| 2020 | Rett Syndrome Center at Montefiore Medical Center Bronx, NY | A | $25,000 | paid | RETT CLINIC | 202131379349300313 |
| 2020 | Jackson Laboraties Bar Harbor, ME | D | $11,500 | paid | MOUSE MODELS ALLELIC SERIES | 202131379349300313 |
| 2020 | Charles River Wilmington, MA | C | $3,698 | paid | BIOMARKERS | 202131379349300313 |
| 2019 | Gene Therapy Consortium | U | $1,480,816 | paid | GENE THERAPY CONSORTIUM | 202002529349300655 |
| 2019 | University of Massashussets Amherst, MA | A | $891,120 | paid | RNA EDITING AND DNA EDITING AS THERAPEUTIC STRATEGY TO TREAT RETT ENHANCING READTHROUGH CAPABILITY FOR NONSENSE MUTATIONS. DEVELOPMENT OF SIRNA COMPOUNDS TO TREAT DUPLICATION SYNDROME. | 202002529349300655 |
| 2019 | Massachusetts Institute of Technology Cambridge, MA | A | $777,332 | paid | RNA EDITING AS THERAPEUTIC STRATEGY TO TREAT RETT. | 202002529349300655 |
| 2019 | Ombd Consortium | U | $619,186 | paid | OMBD CONSORTIUM | 202002529349300655 |
| 2019 | Harvard University Boston, MA | A | $514,195 | paid | REACTIVATING SILENT MECP2 DRUG SCREENING MECP2 FUNCTION | 202002529349300655 |
| 2019 | Oregon Health and Sciences University Foundation Portland, OR | A | $495,423 | paid | MECP2 CONSORTIUM | 202002529349300655 |
| 2019 | Clinical Trial Consortium | U | $306,634 | paid | CLINICAL TRIAL CONSORTIUM | 202002529349300655 |
| 2019 | Case Western Reserve University Cleveland, OH | A | $279,978 | paid | PRE-CLINICAL TESTING OF KETAMINE COMPOUNDS | 202002529349300655 |
| 2019 | Baylor College of Medicine Houston, TX | A | $223,391 | paid | PRECLINICAL DRUG DEVELOPMENT | 202002529349300655 |
| 2019 | University of California at San Diego La Jolla, CA | A | $215,471 | paid | IDENTIFICATION OF MODIFIER GENES THAT SUPPRESS THE EFFECTS OF MECP2 MUTATIONS | 202002529349300655 |
| 2019 | Whitehead Institute of Biomedical Research Cambridge, MA | A | $214,950 | paid | DRUG TESTING | 202002529349300655 |
| 2019 | Mecp2 Consortium | U | $187,994 | paid | MECP2 CONSORTIUM | 202002529349300655 |
| 2019 | Yale University New Haven, CT | A | $157,972 | paid | PROTEIN REPLACEMENT AS A THERAPEUTIC IMPROVING DELIVERY PLATFORMS | 202002529349300655 |
| 2019 | Other | U | $112,653 | paid | BURDEN OF ILLNESS STUDY PROTEIN REPLACEMENT AS A THERAPEUTIC PROCEDURE | 202002529349300655 |
| 2019 | Rett Syndrome Center at Montefiore Medical Center Bronx, NY | A | $75,000 | paid | COPAXONE SUPPLEMENT | 202002529349300655 |
| 2019 | Improving Delivery Platform | U | $59,000 | paid | IMPROVING DELIVERY PLATFORM | 202002529349300655 |
| 2019 | Fred Hutchinson Cancer Research Center Seattle, WA | A | $58,000 | paid | REACTIVATING SILENT MECP2 BNT CONFIRMATION | 202002529349300655 |
| 2019 | Nationwide Children's Hospital Columbus, OH | A | $50,830 | paid | GENE THERAPY CONSORTIUM | 202002529349300655 |
| 2018 | Gene Therapy Consortium | U | $1,800,098 | paid | GENE THERAPY CONSORTIUM | 201911349349301611 |
| 2018 | Ombd Consortium | U | $1,328,615 | paid | OMBD CONSORTIUM | 201911349349301611 |
| 2018 | Mecp2 Consortium | U | $778,719 | paid | MECP2 CONSORTIUM | 201911349349301611 |
| 2018 | Clinical Trial Consortium | U | $755,195 | paid | CLINICAL TRIAL CONSORTIUM | 201911349349301611 |
| 2018 | Q-State Biosciences Inc Cambridge, MA | A | $553,967 | paid | DRUG TESTING AND SCREENING | 201911349349301611 |
| 2018 | University of California at San Diego La Jolla, CA | A | $333,668 | paid | IDENTIFICATION OF MODIFIER GENES THAT SUPPRESS THE EFFECTS OF MECP2 MUTATIONS | 201911349349301611 |
| 2018 | Fred Hutchinson Cancer Research Center Seattle, WA | A | $285,465 | paid | REACTIVATING SILENT MECP2BNT CONFIRMATION | 201911349349301611 |
| 2018 | Whitehead Institute of Biomedical Research Cambridge, MA | A | $259,950 | paid | DRUG TESTING | 201911349349301611 |
| 2018 | Harvard University Boston, MA | A | $255,618 | paid | REACTIVATING SILENT MECP2DRUG SCREENINGMECP2 FUNCTION | 201911349349301611 |
| 2018 | Baylor College of Medicine Houston, TX | A | $242,702 | paid | PRECLINICAL DRUG DEVELOPMENT | 201911349349301611 |
| 2018 | University of Rochester Rochester, NY | A | $181,404 | paid | GENE THERAPY CONSORTIUMDRUG SCREEN | 201911349349301611 |
| 2018 | Nationwide Children's Hospital Columbus, OH | A | $101,659 | paid | GENE THERAPY CONSORTIUM | 201911349349301611 |
| 2018 | Case Western Reserve University Cleveland, OH | A | $84,146 | paid | PRE-CLINICAL TESTING OF COMPOUNDS | 201911349349301611 |
| 2018 | Rett Syndrome Center at Montefiore Medical Center Bronx, NY | A | $75,000 | paid | COPAXONE SUPPLEMENT | 201911349349301611 |
| 2018 | University of North Carolina Chapel Hill, NC | A | $74,487 | paid | GENE THERAPY CONSORTIUMDRUG SCREEN | 201911349349301611 |
| 2018 | Oregon Health and Sciences University Foundation Portland, OR | A | $28,750 | paid | MECP2 CONSORTIUM | 201911349349301611 |
| 2018 | Autism Science Foundation New York, NY | A | $17,500 | paid | GENETIC TESTING | 201911349349301611 |
| 2018 | Washington State University Pullman, WA | A | $10,000 | paid | GENE THERAPY CONSORTIUMDRUG SCREEN | 201911349349301611 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2025 | 2025-12-31 | not stated | 2025v4.1 | 202601359349311400 |
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.2 | 202541969349300024 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v5.1 | 202431849349300208 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202341319349301974 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.2 | 202211369349300611 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.1 | 202131379349300313 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.1 | 202002529349300655 |
| 990 | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201911349349301611 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/260687439.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.