Grants paid by International Rett Syndrome Foundation
EIN 31-1682518 · West Chester, OH · Form 990, Schedule I · NTEE H128
International Rett Syndrome Foundation of West Chester, OH (EIN 31-1682518) reported 58 grants paid totaling $7,305,637 to 32 recipients in tax years 2018–2024, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$7,305,637
58 grants
Recipients
32
distinct organizations
Tax years
2018–2024
7 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 7 | $1,123,479 | — |
| 2019 | 5 | $1,040,581 | — |
| 2020 | 3 | $115,499 | — |
| 2021 | 11 | $1,189,258 | — |
| 2022 | 13 | $1,471,215 | — |
| 2023 | 7 | $687,123 | — |
| 2024 | 12 | $1,678,482 | — |
Top recipients
The 32 recipients receiving the most from International Rett Syndrome Foundation, by grants paid, out of 32 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Massachusetts General Hospital 04-2697983 | A | Boston, MA | 3 | $968,606 | 2024 |
| Vanderbilt University 62-0476822 | A | Nashville, TN | 5 | $704,211 | 2024 |
| Colorado University 84-6000555 | A | Denver, CO | 4 | $540,000 | 2024 |
| The Regents of the University of California US San Diego 94-3067788 | A | Oakland, CA | 4 | $375,000 | 2024 |
| Baylor College of Medicine 74-1613878 | A | Houston, TX | 2 | $350,000 | 2022 |
| Psychogenics Inc 13-4034631 | A | Tarrytown, NY | 2 | $345,000 | 2021 |
| University of Wisconsin 39-6300649 | A | Madison, WI | 1 | $300,000 | 2022 |
| Loyola University Chicago 36-1408475 | A | Chicago, IL | 2 | $300,000 | 2023 |
| University of California San Diego 95-6006144 | A | La Jolla, CA | 3 | $300,000 | 2023 |
| University of Wisconsin-Madison 39-6006492 | A | Madison, WI | 1 | $300,000 | 2024 |
| University of Texas Southwestern 75-6002868 | A | Dallas, TX | 2 | $275,000 | 2024 |
| North Carolina State University 81-0739979 | A | Fountain, NC | 2 | $270,982 | 2022 |
| The Rockefeller University 13-1624158 | A | New York, NY | 2 | $240,000 | 2024 |
| Boston Children's Hospital 04-2774441 | A | Boston, MA | 1 | $150,000 | 2021 |
| The Regents of University of California 95-6006143 | A | Los Angelos, CA | 1 | $150,000 | 2021 |
| Sanford Burnham Prebys Medical Center 51-0197108 | A | La Jolla, CA | 3 | $150,000 | 2022 |
| Icahn School of Medicine at Mount Sinai 13-6171197 | A | New York, NY | 3 | $149,996 | 2022 |
| Syracuse University 15-0532081 | A | Syracuse, NY | 1 | $149,929 | 2018 |
| University of Florida 59-6002052 | A | Gainesville, FL | 1 | $148,550 | 2018 |
| University of California San Diego 95-2544535 | A | San Diego, CA | 1 | $142,406 | 2021 |
| Whitehead University 06-1043412 | A | Cambridge, MA | 3 | $137,500 | 2024 |
| Greenwood Genetic Center 57-0604070 | A | Greenwood, SC | 1 | $125,000 | 2018 |
| North Carolina State University 56-6000756 | A | Raleigh, NC | 1 | $120,982 | 2024 |
| University of Virginia Rector & Visitors 54-6001796 | A | Charlottesville, VA | 1 | $100,000 | 2024 |
| The University of North Carolina at Chapel Hill 56-6001393 | A | Chapel Hill, NC | 1 | $100,000 | 2024 |
| University of Texas Southwestern Medical Center 17-5600286 | A | Dallas, TX | 1 | $89,125 | 2019 |
| University of Pennsylvania 23-1352685 | A | Philadelphia, PA | 1 | $75,000 | 2018 |
| Board of Trustees for University of South Florida 51-3102112 | A | Tampa, FL | 1 | $61,500 | 2019 |
| Uc San Diego 94-6036494 | A | Davis, CA | 1 | $56,250 | 2021 |
| Lucy Therapeutics Inc 82-2363951 | A | Waltham, MA | 1 | $50,000 | 2023 |
| Cincinnati Children's Hospital Medical Center 31-0833936 | A | Cincinnati, OH | 1 | $40,500 | 2020 |
| Childen's Hospital of Philadelphia 23-1352166 | A | Philadelphia, PA | 1 | $40,100 | 2019 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 58 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2024 | The General Hospital Corporation DBA Massachusetts General Hospital Somerville, MA | A | $300,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | University of Wisconsin-Madison Madison, WI | A | $300,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | The Regents of the University of Colorado Denver, CO | A | $137,500 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | Vanderbilt University Nashville, TN | A | $137,500 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | The University of Texas Southwestern Medical Center Dallas, TX | A | $137,500 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | University of Colorado Denver Denver, CO | A | $125,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | North Carolina State University Raleigh, NC | A | $120,982 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | The Rockefeller University New York, NY | A | $120,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | The University of North Carolina at Chapel Hill Chapel Hill, NC | A | $100,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | University of Virginia Rector & Visitors Charlottesville, VA | A | $100,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | Regents of the University of California Davis, CA | A | $50,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2024 | Whitehead University Cambridge, MA | A | $50,000 | paid | Rett Syndrome Research | 202542129349301564 |
| 2023 | Loyola Univeristy Chicago Maywood, IL | A | $150,000 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | The Regents of the University of California US San Diego Oakland, CA | A | $150,000 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | Vanderbilt Nashville, TN | A | $149,623 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | Boston Children's Hospital Boston, MA | A | $75,000 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | University of California Uc San Diego La Jolla, CA | A | $75,000 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | Lucy Therapeutics Inc Waltham, MA | A | $50,000 | paid | Rett Syndrome Research | 202431979349301348 |
| 2023 | Whitehead University Cambridge, MA | A | $37,500 | paid | Rett Syndrome Research | 202431979349301348 |
| 2022 | University of Wisconsin Madison, WI | A | $300,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | North Carolina State University Fountain, NC | A | $150,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Colorado University Denver, CO | A | $140,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | University of Texas Southwestern Dallas, TX | A | $137,500 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | The Regents of University of Colorado Denver, CO | A | $137,500 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | The Rockefeller University New York, NY | A | $120,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | The Regents of the University of California US San Diego Oakland, CA | A | $100,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Baylor College of Medicine Houston, TX | A | $100,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Vanderbilt Nashville, TN | A | $92,466 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Massachusetts General Hospital Boston, MA | A | $68,750 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Whitehead University Cambridge, MA | A | $50,000 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Sanford Burnham Prebys Medical Center La Jolla, CA | A | $37,500 | paid | Rett Syndrome Research | 202341959349300104 |
| 2022 | Icahn School of Medicine at Mount Sinai New York, NY | A | $37,499 | paid | Rett Syndrome Research | 202341959349300104 |
| 2021 | The Regents of University of California Los Angelos, CA | A | $150,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Boston Children's Hospital Boston, MA | A | $150,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Loyola University Chicago Chicago, IL | A | $150,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Vanderbilt Nashville, TN | A | $149,622 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | University of California San Diego San Diego, CA | A | $142,406 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | North Carolina State University Fountain, NC | A | $120,982 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Sanford Burnham Prebys Medical Center La Jolla, CA | A | $75,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | The Regents of the University of California US San Diego Oakland, CA | A | $75,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Icahn School of Medicine at Mount Sinai New York, NY | A | $74,998 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Uc San Diego Davis, CA | A | $56,250 | paid | Rett Syndrome Research | 202241729349301414 |
| 2021 | Psychogenics Paramus, NJ | A | $45,000 | paid | Rett Syndrome Research | 202241729349301414 |
| 2020 | Cincinnati Children's Hospital Medical Center Cincinnati, OH | A | $40,500 | paid | Rett Syndrome Research | 202141599349301139 |
| 2020 | Sanford Burnham Prebys Medical Center La Jolla, CA | A | $37,500 | paid | Rett Syndrome Research | 202141599349301139 |
| 2020 | Icahn School of Medicine at Mount Sinai New York, NY | A | $37,499 | paid | Rett Syndrome Research | 202141599349301139 |
| 2019 | Massachusetts General Hospital Boston, MA | A | $599,856 | paid | Rett Syndrome Research | 202021299349300232 |
| 2019 | Baylor College of Medicine Houston, TX | A | $250,000 | paid | Rett Syndrome Research | 202021299349300232 |
| 2019 | University of Texas Southwestern Medical Center Dallas, TX | A | $89,125 | paid | Rett Syndrome Research | 202021299349300232 |
| 2019 | Board of Trustees for University of South Florida Tampa, FL | A | $61,500 | paid | Rett Syndrome Research | 202021299349300232 |
| 2019 | Childen's Hospital of Philadelphia Philadelphia, PA | A | $40,100 | paid | Rett Syndrome Research | 202021299349300232 |
| 2018 | Psychogenics Inc Tarrytown, NY | A | $300,000 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | Vanderbilt University Nashville, TN | A | $175,000 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | University of California San Diego La Jolla, CA | A | $150,000 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | Syracuse University Syracuse, NY | A | $149,929 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | University of Florida Gainesville, FL | A | $148,550 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | Greenwood Genetic Center Greenwood, SC | A | $125,000 | paid | Rett Syndrome Research | 201941649349300034 |
| 2018 | University of Pennsylvania Philadelphia, PA | A | $75,000 | paid | Rett Syndrome Research | 201941649349300034 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.2 | 202542129349301564 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v5.1 | 202431979349301348 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202341959349300104 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.2 | 202241729349301414 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.1 | 202141599349301139 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.1 | 202021299349300232 |
| 990 | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201941649349300034 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/311682518.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.