Grants paid by The Association for Frontotemporal Degeneration
EIN 41-2073220 · Kng of Prussa, PA · Form 990, Schedule I · NTEE H124
The Association for Frontotemporal Degeneration of Kng of Prussa, PA (EIN 41-2073220) reported 41 grants paid totaling $11,568,777 to 27 recipients in tax years 2019–2025, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$11,568,777
41 grants
Recipients
27
distinct organizations
Tax years
2019–2025
5 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2019 | 8 | $2,588,581 | — |
| 2021 | 10 | $3,393,022 | — |
| 2023 | 7 | $1,514,807 | — |
| 2024 | 10 | $2,524,999 | — |
| 2025 | 6 | $1,547,368 | — |
Top recipients
The 27 recipients receiving the most from The Association for Frontotemporal Degeneration, by grants paid, out of 27 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Alzheimer's Drug Discovery Foundation 20-1082179 | A | New York, NY | 5 | $4,966,666 | 2025 |
| Target Als Foundation Inc 81-0756743 | A | New York, NY | 1 | $1,250,000 | 2021 |
| The Ftd Disorders Registry 47-3601782 | A | King of Prussia, PA | 4 | $837,374 | 2025 |
| Mayo Clinic - Jacksonville 59-3337028 | A | Jacksonville, FL | 1 | $565,248 | 2019 |
| Ucsf 94-6036493 | A | San Franscisco, CA | 2 | $460,000 | 2024 |
| American Brain Foundation 41-1717098 | A | Minneapolis, MN | 4 | $450,000 | 2025 |
| Biosensics LLC 26-0547866 | A | Newton, MA | 1 | $399,999 | 2024 |
| Bluefield Project to Cure Ftd 27-2444495 | A | San Franscisco, CA | 1 | $290,000 | 2023 |
| International Society for Frontotemporal Dementias 61-1581848 | A | Burnsville, MN | 1 | $250,000 | 2024 |
| University of California Berkley 94-6002123 | A | Berkeley, CA | 2 | $230,000 | 2021 |
| Washington University in St Louis 43-0653611 | A | St Louis, MO | 1 | $230,000 | 2025 |
| Massachusetts General Hospital 04-2697983 | A | Boston, MA | 2 | $180,000 | 2021 |
| Columbia University Medical Center 13-5598093 | A | New York, NY | 2 | $180,000 | 2021 |
| Stanford University 94-1156365 | A | Stanford, CA | 1 | $120,000 | 2025 |
| National Institute of Neurological Disorders and Stroke 52-0858115 | A | Bethesda, MD | 1 | $120,000 | 2024 |
| University of California Los Angeles 95-6006143 | A | Los Angeles, CA | 1 | $120,000 | 2021 |
| Georgia State University 58-1845423 | A | Atlanta, GA | 1 | $120,000 | 2024 |
| Baylor College of Medicine 74-1613878 | A | Dallas, TX | 1 | $110,000 | 2023 |
| Emory University 58-0566256 | A | Atlanta, GA | 1 | $110,000 | 2024 |
| University of Texas at Austin 74-6000603 | A | Austin, TX | 1 | $109,994 | 2025 |
| University of Michigan 38-6006309 | A | Ann Arbor, MI | 1 | $109,784 | 2023 |
| The Tank Ltd 01-0798319 | A | New York, NY | 1 | $95,023 | 2023 |
| Drexel University 23-1352630 | A | Philadelphia, PA | 1 | $60,000 | 2019 |
| Johns Hopkins University 52-0595110 | A | Baltimore, MD | 1 | $60,000 | 2019 |
| University of Chicago 36-2177139 | A | Chicago, IL | 1 | $60,000 | 2019 |
| Oregon Health and Science University 93-1176109 | A | Portland, OR | 1 | $59,689 | 2021 |
| Foundation for the National Institutes of Health 52-1986675 | A | North Bethesda, MD | 1 | $25,000 | 2024 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 41 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2025 | Alzheimer's Drug Discovery Foundation New York, NY | A | $700,000 | paid | ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT TREATFTD THERAPEUTIC INITIATIVE | 202542899349301639 |
| 2025 | The Ftd Disorders Registry King of Prussia, PA | A | $287,374 | paid | FTD PATIENT REGISTRY | 202542899349301639 |
| 2025 | Washington University in St Louis St Louis, MO | A | $230,000 | paid | PATHWAYS FOR HOPE PILOT GRANT | 202542899349301639 |
| 2025 | Stanford University Stanford, CA | A | $120,000 | paid | HOLLOWAY POSTDOCTORAL FELLOWSHIP | 202542899349301639 |
| 2025 | University of Texas at Austin Austin, TX | A | $109,994 | paid | WELL-BEING IN FTD PILOT GRANT | 202542899349301639 |
| 2025 | American Brain Foundation Minneapolis, MN | A | $100,000 | paid | CLINICAL RESEARCH SCHOLARSHIPS | 202542899349301639 |
| 2024 | Alzheimer's Drug Discovery Foundation New York, NY | A | $700,000 | paid | ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT AFTD PROGRAMS | 202403189349300830 |
| 2024 | Biosensics LLC Newton, MA | A | $399,999 | paid | AFTD-ALS ASSOC. FTD DIGITAL ASSESSMENT TOOLS | 202403189349300830 |
| 2024 | Ucsf San Franscisco, CA | A | $350,000 | paid | AFTD-ALS ASSOC. FTD DIGITAL ASSESSMENT TOOLS | 202403189349300830 |
| 2024 | The Ftd Disorders Registry King of Prussia, PA | A | $250,000 | paid | FTD PATIENT REGISTRY | 202403189349300830 |
| 2024 | International Society for Frontotemporal Dementias Burnsville, MN | A | $250,000 | paid | INTERNATIONAL CONFERENCE SPONSORSHIP AND STRATEGIC PLANNING | 202403189349300830 |
| 2024 | American Brain Foundation Minneapolis, MN | A | $200,000 | paid | CLINICAL RESEARCH SCHOLARSHIPS | 202403189349300830 |
| 2024 | Georgia State University Atlanta, GA | A | $120,000 | paid | HOLLOWAY POSTDOCTORAL FELLOWSHIP | 202403189349300830 |
| 2024 | National Institute of Neurological Disorders and Stroke Bethesda, MD | A | $120,000 | paid | HOLLOWAY POSTDOCTORAL FELLOWSHIP | 202403189349300830 |
| 2024 | Emory University Atlanta, GA | A | $110,000 | paid | PATHWAYS FOR HOPE PILOT GRANT | 202403189349300830 |
| 2024 | Foundation for the National Institutes of Health North Bethesda, MD | A | $25,000 | paid | SUPPLEMENTAL FUNDING FOR BIOMARKERS CONSORTIUM NEUROFILAMENT | 202403189349300830 |
| 2023 | Alzheimer's Drug Discovery Foundation New York, NY | A | $700,000 | paid | DRUG DISCOVERY, TREAT FTD INITIATIVE | 202313129349302026 |
| 2023 | Bluefield Project to Cure Ftd San Franscisco, CA | A | $290,000 | paid | GENFI RESEARCH CENTER SUPPORT | 202313129349302026 |
| 2023 | Baylor College of Medicine Dallas, TX | A | $110,000 | paid | PILOT GRANT - STEVEN BOEYNAEMS | 202313129349302026 |
| 2023 | Ucsf San Franscisco, CA | A | $110,000 | paid | PILOT GRANT - DANIEL MORDES | 202313129349302026 |
| 2023 | University of Michigan Ann Arbor, MI | A | $109,784 | paid | PILOT GRANT - ALEXANDRU IORDAN | 202313129349302026 |
| 2023 | American Brain Foundation Minneapolis, MN | A | $100,000 | paid | CLINICAL RESEARCH TRAINING SCHOLARSHIP IN FTD | 202313129349302026 |
| 2023 | The Tank Ltd New York, NY | A | $95,023 | paid | UNRAVELLED | 202313129349302026 |
| 2021 | Alzheimer's Drug Discovery Foundation New York, NY | A | $1,433,333 | paid | DRUG DISCOVERY, TREAT FTD INITIATIVE AND DIAGNOSTIC ACCELERATOR | 202113149349300711 |
| 2021 | Target Als Foundation Inc New York, NY | A | $1,250,000 | paid | ALS AND FTD BIOMARKERS RESEARCH | 202113149349300711 |
| 2021 | The Ftd Disorders Registry LLC San Francisco, CA | A | $150,000 | paid | FTD PATIENT REGISTRY | 202113149349300711 |
| 2021 | University of California Berkley Berkeley, CA | A | $120,000 | paid | AFTD POST DOCTORAL FELLOWSHIP - HIJAI REGINA SHIN | 202113149349300711 |
| 2021 | Massachusetts General Hospital Boston, MA | A | $120,000 | paid | AFTD POST DOCTORAL FELLOWSHIP - MATTHEW NOLAN | 202113149349300711 |
| 2021 | University of California Los Angeles Los Angeles, CA | A | $120,000 | paid | AFTD POST DOCTORAL FELLOWSHIP - DANIEL OKOBI | 202113149349300711 |
| 2021 | Massachusetts General Hospital Boston, MA | A | $60,000 | paid | AFTD PILOT GRANT - MARIA CATARINA SILVA | 202113149349300711 |
| 2021 | Oregon Health and Science University Portland, OR | A | $59,689 | paid | AFTD PILOT GRANT - ALLISON LINDAUER | 202113149349300711 |
| 2021 | American Brain Foundation Minneapolis, MN | A | $50,000 | paid | CLINICAL RESEARCH TRAINING SCHOLARSHIP WITH THE AMERICAN ACADEMY OF NEUROLOGY | 202113149349300711 |
| 2021 | Columbia University Medical Center New York, NY | A | $30,000 | paid | FTD INSIGHTS FELLOWSHIP | 202113149349300711 |
| 2019 | Alzheimer's Drug Discovery Foundation New York, NY | A | $1,433,333 | paid | DRUG DISCOVERY, TREAT FTD INITIATIVE AND DIAGNOSTIC ACCELERATOR | 201942829349301114 |
| 2019 | Mayo Clinic - Jacksonville Jacksonville, FL | A | $565,248 | paid | FTD BIOMARKERS INITIATIVE | 201942829349301114 |
| 2019 | The Ftd Disorders Registry LLC San Francisco, CA | A | $150,000 | paid | FTD PATIENT REGISTRY | 201942829349301114 |
| 2019 | Columbia University Medical Center New York, NY | A | $150,000 | paid | FTD BIOMARKERS INITIATIVE | 201942829349301114 |
| 2019 | University of California - Berkeley Berkeley, CA | A | $110,000 | paid | POSTDOCTORAL FELLOWSHIP | 201942829349301114 |
| 2019 | University of Chicago Chicago, IL | A | $60,000 | paid | BASIC SCIENCE PILOT GRANT | 201942829349301114 |
| 2019 | Johns Hopkins University Baltimore, MD | A | $60,000 | paid | SUSAN MARCUS MEMORIAL FUND CLINICAL RESEARCH PILOT GRANT | 201942829349301114 |
| 2019 | Drexel University Philadelphia, PA | A | $60,000 | paid | NONPHARMACOLOGICAL THERAPIES PILOT GRANT | 201942829349301114 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2025 | 2025-06-30 | not stated | 2024v5.2 | 202542899349301639 |
| 990 | 2024 | 2024-06-30 | not stated | 2023v5.1 | 202403189349300830 |
| 990 | 2023 | 2023-06-30 | not stated | 2022v5.0 | 202313129349302026 |
| 990 | 2021 | 2021-06-30 | not stated | 2020v4.1 | 202113149349300711 |
| 990 | 2019 | 2019-06-30 | not stated | 2018v3.1 | 201942829349301114 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/412073220.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.