Grants paid by Fshd Society
EIN 52-1762747 · Randolph, MA · Form 990, Schedule I · NTEE H20Z
Fshd Society of Randolph, MA (EIN 52-1762747) reported 35 grants paid totaling $3,733,911 to 15 recipients in tax years 2018–2022, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$3,733,911
35 grants
Recipients
15
distinct organizations
Tax years
2018–2022
5 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 6 | $451,919 | — |
| 2019 | 9 | $914,862 | — |
| 2020 | 7 | $535,174 | — |
| 2021 | 9 | $1,418,356 | — |
| 2022 | 4 | $413,600 | — |
Top recipients
The 15 recipients receiving the most from Fshd Society, by grants paid, out of 15 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| University of Kansas Medical Center 48-1108830 | A | Fairway, KS | 5 | $1,081,254 | 2022 |
| Yale University 06-0646973 | A | New Haven, CT | 2 | $470,280 | 2021 |
| The Research Institute at Nationwide Children's Hospital 31-6056230 | A | Columbus, OH | 4 | $444,410 | 2021 |
| University of Colorado Denver Anschutz Medical Campus 84-6000555 | A | Aurora, CO | 2 | $268,537 | 2021 |
| Children's Research Institute Childrens National Health Systems 52-1654453 | A | Silver Spring, MD | 3 | $264,533 | 2021 |
| St Louis University 43-0654872 | A | St Louis, MO | 2 | $189,000 | 2022 |
| University of Minnesota 41-6007513 | A | Minneapolis, MN | 2 | $183,498 | 2022 |
| University of Maryland 52-6002033 | A | Baltimore, MD | 2 | $172,300 | 2021 |
| Boston University School of Medicine Department of Neurology | U | Boston, MA | 1 | $157,620 | 2019 |
| Johns Hopkins University 52-0595110 | A | Baltimore, MD | 1 | $143,000 | 2022 |
| Boston Children's Hospital 04-2774441 | A | Boston, MA | 1 | $125,000 | 2018 |
| University of Nevada Reno 88-6000024 | A | Reno, NV | 2 | $119,768 | 2020 |
| University of Utah 87-6000525 | A | Salt Lake City, UT | 1 | $49,621 | 2021 |
| University of Rochester 16-0743209 | A | Rochester, NY | 4 | $43,295 | 2021 |
| Ohio State University Medical Center Development & Alumni Affairs 31-1145986 | A | Columbus, OH | 3 | $21,795 | 2020 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 35 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2022 | Johns Hopkins University Baltimore, MD | A | $143,000 | paid | THE FIBRO-ADIPOGENIC PROGENITORS, THE EXOSOMES, AND THE FSHD MYOPATHY | 202340899349300449 |
| 2022 | University of Kansas Medical Center Fairway, KS | A | $120,000 | paid | CLINICAL TRIALS RESEARCH NETWORK (CTRN) FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) | 202340899349300449 |
| 2022 | University of Minnesota Minneapolis, MN | A | $83,500 | paid | INTERROGATION OF MDUX EXPRESSION IN MUSCLE IN MICE | 202340899349300449 |
| 2022 | St Louis University St Louis, MO | A | $67,100 | paid | MOLECULAR MECHANISMS OF P38-DEPENDENT AND -INDEPENDENT DUX4 ACTIVATION DURING MYOGENESIS | 202340899349300449 |
| 2021 | Yale University New Haven, CT | A | $360,280 | paid | CHARACTERIZATION OF DUX4-INDUCED METABOLIC AND HYPOXIC CHANGES IN FSHD AND IDENTIFICATION OF TOXIC DUX4-INDUCED TRANSCRIPTS. | 202240959349300404 |
| 2021 | University of Kansas Medical Center Fairway, KS | A | $300,000 | paid | CLINICAL TRIALS RESEARCH NETWORK (CTRN) FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) | 202240959349300404 |
| 2021 | The Research Institute at Nationwide Children's Hospital Columbus, OH | A | $193,310 | paid | DEVELOPING AAV-CRISPR-CAS13 BASED GENE THERAPY FOR FSHD | 202240959349300404 |
| 2021 | University of Maryland Baltimore, MD | A | $152,600 | paid | SLC34A2 AS A BIOMARKER FOR FSHD | 202240959349300404 |
| 2021 | University of Colorado Denver, CO | A | $152,600 | paid | MECHANISM OF CONTEXT-SPECIFIC NMD INHIBITION BY DUX4 | 202240959349300404 |
| 2021 | St Louis University St Louis, MO | A | $121,900 | paid | MOLECULAR MECHANISMS OF P38-DEPENDENT AND INDEPENDENT DUX4 ACTIVATION DURING MYOGENESIS | 202240959349300404 |
| 2021 | Children's Research Institute Childrens National Health Systems Silver Spring, MD | A | $63,735 | paid | MEMBRANE REPAIR DEFICIT IN FSHD PATHOPHYSIOLOGY | 202240959349300404 |
| 2021 | University of Utah Salt Lake City, UT | A | $49,621 | paid | NANOPORE CAS9-TARGETED SEQUENCING (NCATS DIAGNOSTICS FOR FSHD) | 202240959349300404 |
| 2021 | University of Rochester Rochester, NY | A | $24,310 | paid | FSHD BIOLOGICAL RESOURCES AVAILABLE THROUGH THE CTRN (BIOAVAILABLE) | 202240959349300404 |
| 2020 | University of Kansas Medical Center Fairway, KS | A | $348,000 | paid | CLINICAL TRIALS RESEARCH NETWORK (CTRN) FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) AND ARTIFICAL INTELLIGENCE PROOF OF CONCEPT FOR FSHD RESEARCH | 202120919349301122 |
| 2020 | The Research Institute at Nationwide Children's Hospital Columbus, OH | A | $80,100 | paid | IN VIVO DETECTION OF DUX4 MRNA USING RNASCOPE | 202120919349301122 |
| 2020 | Children's Research Institute Childrens National Health Systems Silver Spring, MD | A | $74,829 | paid | MEMBRAN REPAIR DEFICIT IN FSHD PATHOPHYSIOLOGY | 202120919349301122 |
| 2020 | University of Maryland Baltimore, MD | A | $19,700 | paid | DEVELOPING A "SANDWICH" IMMUNOASSAY FOR SLC34A2, A POTENTIAL BIOMARKER FOR FSHD | 202120919349301122 |
| 2020 | University of Rochester Rochester, NY | A | $7,545 | paid | DIGITIZING THE US FSHD PATIENT REGISTRY | 202120919349301122 |
| 2020 | Ohio State University Medical Center Development & Alumni Affairs Columbus, OH | A | $5,000 | paid | FSHD RESEARCH FUND | 202120919349301122 |
| 2020 | 88-6000024 | A | $0 | paid | 202120919349301122 | |
| 2019 | University of Kansas Medical Center Fairway, KS | A | $180,000 | paid | CLINICAL TRIALS RESEARCH NETWORK (CTRN) FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) | 202010939349300821 |
| 2019 | Boston University School of Medicine Department of Neurology Boston, MA | U | $157,620 | paid | MECHANISMS OF DUX4-INDUCED MUSCLE ATROPHY | 202010939349300821 |
| 2019 | Children's Research Institute Childrens National Health Systems Silver Spring, MD | A | $125,969 | paid | OPTIMIZING GAPMER THERAPY FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY | 202010939349300821 |
| 2019 | University of Nevada Reno Reno, NV | A | $119,768 | paid | NEW COMPOUND DISCOVERY TARGETING ASH1L FOR FSHD | 202010939349300821 |
| 2019 | University of Colorado Denver Anschutz Medical Campus Aurora, CO | A | $115,937 | paid | INVESTIGATING THE MOLECULAR CONSEQUENCES OF REDUCED NMD IN FSHD SKELETAL MUSCLE MYOBLASTS | 202010939349300821 |
| 2019 | Yale University New Haven, CT | A | $110,000 | paid | IDENTIFICATION AND TESTING OF DUX4 INHIBITORY COMPOUNDS | 202010939349300821 |
| 2019 | The Research Institute at Nationwide Children's Hospital Columbus, OH | A | $91,000 | paid | IDENTIFICATION OF NATURAL HUMAN DUX4-TARGETED MIRNAS AND DEVELOPMENT OF A NOVEL DUX4-TARGETED MIRNA-BASED GENE THERAPY FOR FSHD | 202010939349300821 |
| 2019 | Ohio State University Medical Center Development & Alumni Affairs Columbus, OH | A | $8,848 | paid | FSHD RESEARCH FUND | 202010939349300821 |
| 2019 | University of Rochester Rochester, NY | A | $5,720 | paid | OPTIMIZING THE UTILITY OF THE NATIONAL REGISTRY FOR FSHD RESEARCH AND TRIAL RECRUITMENT | 202010939349300821 |
| 2018 | University of Kansas Medical Center Fairway, KS | A | $133,254 | paid | CLINICAL TRIALS RESEARCH NETWORK (CTRN) FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) | 201910949349301026 |
| 2018 | Boston Children's Hospital Boston, MA | A | $125,000 | paid | THE ROLE OF ESTROGEN RECEPTORS IN FSHD-1 MECHANISM | 201910949349301026 |
| 2018 | University of Minnesota Minneapolis, MN | A | $99,998 | paid | DETERMINING THE THERAPEUTIC POTENTIAL OF PLURIPOTENT STEM CELL-DERIVED MYOGENIC PROGENITORS IN THE IDUX4PA MOUSE MODEL | 201910949349301026 |
| 2018 | The Research Institute at Nationwide Children's Hospital Columbus, OH | A | $80,000 | paid | NATURAL MICRORNAS AS POTENTIAL MODIFIERS OF DUX4 TOXICITY | 201910949349301026 |
| 2018 | Ohio State University Medical Center Development & Alumni Affairs Columbus, OH | A | $7,947 | paid | FSHD RESEARCH FUND | 201910949349301026 |
| 2018 | University of Rochester Rochester, NY | A | $5,720 | paid | OPTIMIZING THE UTILITY OF THE NATIONAL REGISTRY FOR FSHD RESEARCH AND TRIAL RECRUITMEN | 201910949349301026 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202340899349300449 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.2 | 202240959349300404 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.1 | 202120919349301122 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.1 | 202010939349300821 |
| 990 | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201910949349301026 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/521762747.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.