Grants paid by Together Strong Npc Foundation
EIN 82-1913775 · DE · Form 990-PF, Part XV
Together Strong Npc Foundation of DE (EIN 82-1913775) reported 16 grants paid totaling $2,266,544 to 9 recipients in tax years 2018–2022, on Form 990-PF, Part XV. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$2,266,544
16 grants
Recipients
9
distinct organizations
Tax years
2018–2022
4 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 1 | $50,000 | — |
| 2019 | 4 | $738,417 | — |
| 2020 | 6 | $839,950 | — |
| 2022 | 5 | $638,177 | — |
Top recipients
The 9 recipients receiving the most from Together Strong Npc Foundation, by grants paid, out of 9 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| The Board of Trustees of the University of Illinoi 37-6000511 | C | Urbana, IL | 3 | $965,250 | 2022 |
| Andrews Firefly Fund 81-3737330 | C | Austin, TX | 2 | $533,334 | 2020 |
| Eunice Kennedy Shriver National Institute of Child | U | Bethesda, MD | 5 | $498,750 | 2022 |
| International Niemann-Pick Disease Registry | U | Washington, TYNE AND WEAR | 1 | $75,000 | 2019 |
| University of Notre Dame 52-1539710 | B | Notre Dame, IN | 1 | $50,000 | 2018 |
| Roma Tre University | U | Rome | 1 | $43,283 | 2020 |
| Roma Tre University | U | ROME | 1 | $43,283 | 2022 |
| Agencia Estatal Consejo Superior de Investigacione | U | Barcelona | 1 | $42,000 | 2020 |
| Ara Parseghian Medical Research Foundation 86-0775966 | B | Tucson, AZ | 1 | $15,644 | 2022 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 16 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2022 | The Board of Trustees of the University of Illinoi Urbana, IL | C | $321,750 | paid | Biochemical Markers of NPC and Clinical Correlates fund | 202332279349101303 |
| 2022 | Eunice Kennedy Shriver National Institute of Child Bethesda, MD | U | $182,500 | paid | Genomic and Phenotypic database for Niemann-Pick Disease, type C | 202332279349101303 |
| 2022 | Eunice Kennedy Shriver National Institute of Child Bethesda, MD | U | $75,000 | paid | General & Unrestricted | 202332279349101303 |
| 2022 | Roma Tre University ROME | U | $43,283 | paid | General & Unrestricted | 202332279349101303 |
| 2022 | Ara Parseghian Medical Research Foundation Tucson, AZ | B | $15,644 | paid | General & Unrestricted | 202332279349101303 |
| 2020 | The Board of Trustees of the University of Illinoi Urbana, IL | C | $321,750 | paid | Biochemical Markers of NPC and Clinical Correlates FUND | 202113189349100801 |
| 2020 | Andrews Firefly Fund Austin, TX | C | $266,667 | paid | Firefly's NPC Newborn Screening Initiative FUND | 202113189349100801 |
| 2020 | Eunice Kennedy Shriver National Institute of Child Bethesda, MD | U | $91,250 | paid | Genomic and Phenotypic database for Niemann-Pick Disease, type C FUND | 202113189349100801 |
| 2020 | Eunice Kennedy Shriver National Institute of Child Bethesda, MD | U | $75,000 | paid | research project in Biochemical Markers in NPC | 202113189349100801 |
| 2020 | Roma Tre University Rome | U | $43,283 | paid | General & Unrestricted | 202113189349100801 |
| 2020 | Agencia Estatal Consejo Superior de Investigacione Barcelona | U | $42,000 | paid | General & Unrestricted | 202113189349100801 |
| 2019 | The Board of Trustees of the University of Illinoi Urbana, IL | C | $321,750 | paid | Biochemical Markers of NPC and Clinical Correlates program | 202031849349100308 |
| 2019 | Andrews Firefly Fund Austin, TX | C | $266,667 | paid | Firefly's NPC Newborn Screening Initiative | 202031849349100308 |
| 2019 | International Niemann-Pick Disease Registry Washington, TYNE AND WEAR | U | $75,000 | paid | Expenditure Responsibility Grant | 202031849349100308 |
| 2019 | Eunice Kennedy Shriver National Institute of Child Bethesda, MD | U | $75,000 | paid | research project in Biochemical Markers in NPC | 202031849349100308 |
| 2018 | University of Notre Dame Notre Dame, IN | B | $50,000 | paid | Externally-led Patient-Focused Drug Development meeting in Niemann-Pick Disease Type C | 201921509349100307 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990PF | 2022 | 2022-10-17 | not stated | 2022v5.0 | 202332279349101303 |
| 990PF | 2020 | 2020-12-31 | not stated | 2020v4.1 | 202113189349100801 |
| 990PF | 2019 | 2019-12-31 | not stated | 2019v5.1 | 202031849349100308 |
| 990PF | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201921509349100307 |
Derived from IRS Form 990-PF e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/821913775.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.