Grants paid by National Tuberous Sclerosis Association
EIN 95-3018799 · Silver Spring, MD · Form 990, Schedule I · NTEE G030
National Tuberous Sclerosis Association of Silver Spring, MD (EIN 95-3018799) reported 99 grants paid totaling $5,565,139 to 32 recipients in tax years 2018–2025, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$5,565,139
99 grants
Recipients
32
distinct organizations
Tax years
2018–2025
9 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2018 | 8 | $388,585 | — |
| 2019 | 9 | $474,302 | — |
| 2020 | 13 | $623,402 | — |
| 2021 | 12 | $834,756 | — |
| 2022 | 24 | $1,315,222 | — |
| 2023 | 13 | $632,808 | — |
| 2024 | 9 | $594,369 | — |
| 2025 | 11 | $701,695 | — |
Top recipients
The 32 recipients receiving the most from National Tuberous Sclerosis Association, by grants paid, out of 32 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| National Organization for Rare Disorders 13-3223946 | A | Danbury, CT | 8 | $940,000 | 2025 |
| Children's Hospital Corporation 04-2774441 | A | Boston, MA | 11 | $862,186 | 2025 |
| Brigham & Woman's Hospital 04-2312909 | A | Boston, MA | 7 | $795,808 | 2023 |
| University of Texas Southwestern Medical Center 75-6002868 | A | Dallas, TX | 7 | $431,250 | 2023 |
| University of Maryland Baltimore 52-6002033 | A | Baltimore, MD | 4 | $224,884 | 2023 |
| Children's Hospital Medical Center 31-0833936 | A | Cincinnati, OH | 4 | $218,750 | 2025 |
| University of Washington 91-6001537 | A | Seattle, WA | 3 | $175,000 | 2022 |
| Columbia University in the City of New York | U | New York, NY | 4 | $168,750 | 2024 |
| Northwestern University 36-2167818 | A | Chicago, IL | 3 | $150,001 | 2021 |
| Baylor College of Medicine 74-1613878 | A | Dallas, TX | 3 | $150,000 | 2025 |
| University of Texas Dallas 75-1305566 | A | Richardson, TX | 3 | $150,000 | 2025 |
| University of California Irvine 95-2226406 | A | Irvine, CA | 3 | $150,000 | 2025 |
| Yale University 06-0646973 | A | New Haven, CT | 3 | $148,768 | 2020 |
| Brown University 05-0258809 | A | Providence, RI | 3 | $118,972 | 2022 |
| University of Alabama 63-6005396 | A | Birmingham, AL | 2 | $107,182 | 2023 |
| Northwestern University 36-2167817 | A | Evanston, IL | 2 | $93,750 | 2025 |
| University of Massachusetts 54-2084125 | A | Worcester, MA | 2 | $93,750 | 2025 |
| Emory University 58-0566256 | A | Atlanta, GA | 2 | $93,750 | 2025 |
| University of California Los Angeles Campus 95-6006143 | A | Los Angeles, CA | 4 | $65,150 | 2025 |
| University of Virginia 54-6001796 | A | Charlottesville, VA | 3 | $56,250 | 2023 |
| Clemson University 57-6000254 | A | Clemson, SC | 3 | $55,114 | 2025 |
| President & Fellows of Harvard College 04-2103580 | A | Boston, MA | 1 | $50,000 | 2018 |
| Wayne State University 38-6028429 | A | Detroit, MI | 1 | $50,000 | 2018 |
| Nationwide Children's Hospital 31-6056230 | A | Detroit, MI | 2 | $40,000 | 2022 |
| Vanderbilt University 35-2528741 | A | Nashville, TN | 2 | $37,500 | 2021 |
| University of California Berkeley 94-6002123 | A | Berkeley, CA | 2 | $37,500 | 2021 |
| Weill Medical College of Cornell University 13-1623978 | A | New York, NY | 1 | $21,000 | 2018 |
| University of New England 01-0211810 | A | Biddeford, ME | 1 | $20,000 | 2023 |
| University of Cincinnati 31-6000989 | A | Cincinnati, OH | 1 | $20,000 | 2018 |
| University of Tennessee Health Science Ctr 62-6001636 | A | Memphis, TN | 1 | $18,511 | 2020 |
| American Thoracic Society 06-1548706 | A | New York, NY | 2 | $11,000 | 2020 |
| Ut Health Science Center at Houston 74-1761309 | A | Houston, TX | 1 | $10,313 | 2018 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 99 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2025 | National Organization for Rare Disorders Woburn, MA | A | $150,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202631139349300018 |
| 2025 | Boston Children's Hospital Boston, MA | A | $100,579 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | Emory University Atlanta, GA | A | $75,000 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | University of Massachusetts Worcester, MA | A | $75,000 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | Northwestern University Evanston, IL | A | $75,000 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | Baylor College of Medicine Dallas, TX | A | $56,250 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | University of Texas Dallas Richardson, TX | A | $56,250 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | University of California Irvine Irvine, CA | A | $56,250 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | Clemson University Atlanta, GA | A | $19,866 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | The Regents of the University of California Los Angeles, CA | A | $18,750 | paid | RESEARCH GRANT | 202631139349300018 |
| 2025 | Cincinnati of Children's Hospital Cincinnati, OH | A | $18,750 | paid | RESEARCH GRANT | 202631139349300018 |
| 2024 | National Organization for Rare Disorders Woburn, MA | A | $175,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202531019349300508 |
| 2024 | Boston Children's Hospital Boston, MA | A | $81,869 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | University of California Irvine Irvine, CA | A | $75,000 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | University of Texas Dallas Richardson, TX | A | $75,000 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | Baylor College of Medicine Dallas, TX | A | $75,000 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | Columbia University in the City of New York New York, NY | U | $56,250 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | University of Massachusetts Worcester, MA | A | $18,750 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | Emory University Atlanta, GA | A | $18,750 | paid | RESEARCH GRANT | 202531019349300508 |
| 2024 | Northwestern University Evanston, IL | A | $18,750 | paid | RESEARCH GRANT | 202531019349300508 |
| 2023 | National Organization for Rare Disorders Woburn, MA | A | $125,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202432689349301018 |
| 2023 | University of Alabama Birmingham Birmingham, AL | A | $91,649 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | Columbia University in the City of New York New York, NY | U | $75,000 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | Boston Children's Hospital Boston, MA | A | $57,409 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of Maryland Baltimore Baltimore, MD | A | $56,250 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | Brigham & Women's Hospital Boston, MA | A | $56,250 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of Texas Southwestern Medical Center Dallas, TX | A | $56,250 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of New England Biddeford, ME | A | $20,000 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of California Los Angeles, CA | A | $20,000 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of Texas Dallas Richardson, TX | A | $18,750 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of California Irvine Irvine, CA | A | $18,750 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | Baylor College of Medicine Dallas, TX | A | $18,750 | paid | RESEARCH GRANT | 202432689349301018 |
| 2023 | University of Virginia Charlottesville, VA | A | $18,750 | paid | RESEARCH GRANT | 202432689349301018 |
| 2022 | Brigham & Women's Hospital Boston, MA | A | $179,892 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | Brigham & Women's Hospital Boston, MA | A | $179,892 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | National Organization for Rare Disorders Woburn, MA | A | $75,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202432689349300943 |
| 2022 | National Organization for Rare Disorders Woburn, MA | A | $75,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202301049349301205 |
| 2022 | University of Washington Seattle, WA | A | $75,000 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | University of Maryland Baltimore Baltimore, MD | A | $75,000 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | University of Maryland Baltimore Baltimore, MD | A | $75,000 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | University of Texas Southwestern Medical Center Dallas, TX | A | $75,000 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | University of Washington Seattle, WA | A | $75,000 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | University of Texas Southwestern Medical Center Dallas, TX | A | $75,000 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Boston Children's Hospital Boston, MA | A | $57,409 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Boston Children's Hospital Boston, MA | A | $57,409 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | Brown University Providence, RI | A | $31,986 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Brown University Providence, RI | A | $31,986 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | Nationwide Children's Hospital Detroit, MI | A | $20,000 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | Nationwide Children's Hospital Detroit, MI | A | $20,000 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Columbia University in the City of New York New York, NY | U | $18,750 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | Columbia University in the City of New York New York, NY | U | $18,750 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | University of Virginia Charlottesville, VA | A | $18,750 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | University of Virginia Charlottesville, VA | A | $18,750 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Clemson University Clemson, SC | A | $17,624 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | Clemson University Clemson, SC | A | $17,624 | paid | RESEARCH GRANT | 202301049349301205 |
| 2022 | University of California Los Angeles Campus Los Angeles, CA | A | $13,200 | paid | RESEARCH GRANT | 202432689349300943 |
| 2022 | University of California Los Angeles Campus Los Angeles, CA | A | $13,200 | paid | RESEARCH GRANT | 202301049349301205 |
| 2021 | National Organization for Rare Disorders Danbury, CT | A | $225,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202241019349300349 |
| 2021 | Children's Hospital Corporation Boston, MA | A | $112,500 | paid | RESEARCH GRANTS | 202241019349300349 |
| 2021 | Brigham & Women's Hospital Boston, MA | A | $109,963 | paid | RESEARCH GRANTS | 202241019349300349 |
| 2021 | Children's Hospital Medical Center Cincinnati, OH | A | $100,000 | paid | CLINICAL RESEARCH | 202241019349300349 |
| 2021 | Boston Children's Hospital Boston, MA | A | $57,409 | paid | CLINICAL RESEARCH | 202241019349300349 |
| 2021 | Northwestern University Chicago, IL | A | $56,250 | paid | RESEARCH GRANTS | 202241019349300349 |
| 2021 | Brown University Providence, RI | A | $55,000 | paid | CLINICAL RESEARCH | 202241019349300349 |
| 2021 | Vanderbilt University Nashville, TN | A | $28,125 | paid | RESEARCH GRANT | 202241019349300349 |
| 2021 | University of California Berkeley Berkeley, CA | A | $28,125 | paid | RESEARCH GRANT | 202241019349300349 |
| 2021 | University of Washington Seattle, WA | A | $25,000 | paid | RESEARCH GRANT | 202241019349300349 |
| 2021 | University of Texas Southwestern Medical Center Dallas, TX | A | $18,750 | paid | RESEARCH GRANTS | 202241019349300349 |
| 2021 | University of Maryland Baltimore Baltimore, MD | A | $18,634 | paid | RESEARCH GRANT | 202241019349300349 |
| 2020 | Children's Hospital Corporation Boston, MA | A | $150,001 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2020 | Northwestern University Chicago, IL | A | $75,001 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2020 | National Organization for Rare Disorders Danbury, CT | A | $65,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202101029349300610 |
| 2020 | Boston Children's Hospital Boston, MA | A | $57,409 | paid | CLINICAL RESEARCH GRANT | 202101029349300610 |
| 2020 | University of Texas Southwestern Medical Center Dallas, TX | A | $56,250 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2020 | Yale University New Haven, CT | A | $56,011 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2020 | Brigham & Woman's Hospital Boston, MA | A | $55,436 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2020 | Children's Hospital Medical Center Cincinnati, OH | A | $50,000 | paid | CLINICAL RESEARCH GRANTS | 202101029349300610 |
| 2020 | University of Tennessee Health Science Ctr Memphis, TN | A | $18,511 | paid | RESEARCH GRANT | 202101029349300610 |
| 2020 | University of Alabama Birmingham, AL | A | $15,533 | paid | CLINICAL RESEARCH GRANT | 202101029349300610 |
| 2020 | University of California Berkeley Berkeley, CA | A | $9,375 | paid | RESEARCH GRANT | 202101029349300610 |
| 2020 | Vanderbilt University Nashville, TN | A | $9,375 | paid | RESEARCH GRANT | 202101029349300610 |
| 2020 | American Thoracic Society New York, NY | A | $5,500 | paid | RESEARCH GRANTS | 202101029349300610 |
| 2019 | Boston Children's Hospital Boston, MA | A | $92,692 | paid | CLINICAL RESEARCH GRANT | 202031049349300853 |
| 2019 | University of Texas Southwestern Medical Center Dallas, TX | A | $75,000 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | Yale University New Haven, CT | A | $74,235 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | Brigham & Woman's Hospital Boston, MA | A | $70,625 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | National Organization for Rare Disorders Danbury, CT | A | $50,000 | paid | TSC TRAVEL AND LODGING ASSISTANCE PROGRAM | 202031049349300853 |
| 2019 | Children's Hospital Medical Center Cincinnati, OH | A | $50,000 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | Children's Hospital Corporation Boston, MA | A | $37,500 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | Northwestern University Chicago, IL | A | $18,750 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2019 | American Thoracic Society New York, NY | A | $5,500 | paid | RESEARCH GRANTS | 202031049349300853 |
| 2018 | Brigham & Woman's Hospital Boston, MA | A | $143,750 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | University of Texas Southwestern Medical Center Dallas, TX | A | $75,000 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | President & Fellows of Harvard College Boston, MA | A | $50,000 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | Wayne State University Detroit, MI | A | $50,000 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | Weill Medical College of Cornell University New York, NY | A | $21,000 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | University of Cincinnati Cincinnati, OH | A | $20,000 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | Yale University New Haven, CT | A | $18,522 | paid | RESEARCH GRANTS | 201930959349300318 |
| 2018 | Ut Health Science Center at Houston Houston, TX | A | $10,313 | paid | RESEARCH GRANTS | 201930959349300318 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2025 | 2025-12-31 | not stated | 2025v4.1 | 202631139349300018 |
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.1 | 202531019349300508 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v5.1 | 202432689349301018 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202301049349301205 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v5.0 | 202432689349300943 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.2 | 202241019349300349 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.1 | 202101029349300610 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.1 | 202031049349300853 |
| 990 | 2018 | 2018-12-31 | not stated | 2018v3.1 | 201930959349300318 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/953018799.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.