Grants paid by Phelan Mcdermid Syndrome Foundation
EIN 04-3673104 · Osprey, FL · Form 990, Schedule I · NTEE H80
Phelan Mcdermid Syndrome Foundation of Osprey, FL (EIN 04-3673104) reported 10 grants paid totaling $623,980 to 8 recipients in tax years 2021–2025, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$623,980
10 grants
Recipients
8
distinct organizations
Tax years
2021–2025
5 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2021 | 1 | $11,688 | — |
| 2022 | 1 | $20,900 | — |
| 2023 | 4 | $220,000 | — |
| 2024 | 3 | $271,392 | — |
| 2025 | 1 | $100,000 | — |
Top recipients
The 8 recipients receiving the most from Phelan Mcdermid Syndrome Foundation, by grants paid, out of 8 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Boston Children's Hospital Children's Hospital Corporation 04-2774441 | A | Boston, MA | 2 | $216,392 | 2024 |
| Seaver Autism Center Icahn School of Medicine at Mount Sinai 13-6171197 | A | New York, NY | 2 | $120,900 | 2024 |
| Children's Hospital of Los Angeles 95-1690977 | A | Los Angeles, CA | 1 | $100,000 | 2025 |
| University of Miami 59-0624458 | A | Coral Gables, FL | 1 | $55,000 | 2023 |
| Clemson University Foundation 57-0426335 | A | Clemson, SC | 1 | $55,000 | 2023 |
| Northeastern University 04-1679980 | A | Boston, MA | 1 | $55,000 | 2024 |
| Kyle's Angels 85-1554186 | A | Saint Robert, MO | 1 | $11,688 | 2021 |
| Autism Science Foundation 26-4522309 | A | Scarsdale, NY | 1 | $10,000 | 2023 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 10 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2025 | Children's Hospital of Los Angeles Los Angeles, CA | A | $100,000 | paid | To identify diagnostic biomarkers in up to 30 individuals with Phelan-McDermid syndrome who present with neuropsychiatric disease. To determine whether these individuals exhibit distinct cytokine, proteomic, and metabolomic profiles in the serum and cerebrospinal fluid indicative of systemic and/or central inflammation. To evaluate markers of cortical and white matter disruption using magnetic resonance imaging and electroencephalography. | 202630699349300018 |
| 2024 | Boston Children's Hospital Children's Hospital Corporation Boston, MA | A | $116,392 | paid | To support the conclusion of the second phase of the Developmental Synaptopathies Consortium's Phelan-McDermid syndrome natural history study, including Boston Children's Hospital personnel costs and subawards to Icahn Mount Sinai Medical Center and Rush University for personnel costs as well. | 202510729349300041 |
| 2024 | Seaver Autism Center Icahn School of Medicine at Mount Sinai New York, NY | A | $100,000 | paid | To fund the further development of the Phelan-McDermid syndrome Inventory for Psychiatric Symptoms (PIPS) tool, to better support individuals with Phelan McDermid syndrome and their caregivers with managing and intervening in neuropsychiatric episodes experienced by these individuals. | 202510729349300041 |
| 2024 | Northeastern University Boston, MA | A | $55,000 | paid | To support a project seeking to expand a new natural communication sampling protocol called ROSCO (Rapid Online Sample of Communication). ROSCO is designed to elicit meaningful samples of communication from individuals with Phelan McDermid syndrome via online-video platforms like Zoom in approximately 15 minutes. This study will validate the ROSCO paradigm with the Phelan McDermid syndrome population longitudinally, using repeated samples to establish reliability and sensitivity to communication change over time. | 202510729349300041 |
| 2023 | Children's Hospital Corporation DBA Boston Children's Hospital Boston, MA | A | $100,000 | paid | To understand whether people with Phelan-McDermid syndrome, particularly those with severe neuropsychiatric illness (SNPI) -- have underlying differences in their immune system that might guide treatment. | 202440619349300914 |
| 2023 | Clemson University Foundation Clemson, SC | A | $55,000 | paid | To study the response of cells from individuals with Phelan-McDermid syndrome to candidate therapeutics/treatments (such as Insulin-like Growth Factor 1 and human growth hormone) and identify subgroups in the Phelan-McDermid syndrome population that will potentially respond better or worse to the selected compounds. | 202440619349300914 |
| 2023 | University of Miami Coral Gables, FL | A | $55,000 | paid | To develop an alternative objective measure of Gastrointestinal motility (GI transit) in individuals with Phelan-McDermid syndrome. Muffins with blue dye will be ingested by individuals with Phelan-McDermid syndrome and caregivers will use a mobile app to track and report GI transit time. | 202440619349300914 |
| 2023 | Autism Science Foundation Scarsdale, NY | A | $10,000 | paid | To model neuroinflammation and neuropsychiatric regression in profound autism. | 202440619349300914 |
| 2022 | Icahn School of Medicine at Mount Sinai New York, NY | A | $20,900 | paid | To define and retrospectively characterize the neurobehavioral profile of individuals with Phelan-McDermid syndrome and neuropsychiatric decompensation. To develop clinician and caregiver survey tools for qualitative assessment of clinical outcomes based on recommendations from the Phelan-McDermid syndrome Neuropsychiatric Consultation Group. | 202310699349301566 |
| 2021 | Kyle's Angels Saint Robert, MO | A | $11,688 | paid | To fund travel assistance for individuals with Phelan-McDermid Syndrome and their families to events hosted by the Phelan-McDermid Syndrome Foundation, most notably the biennial international family conference. | 202240689349300049 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2025 | 2025-12-31 | not stated | 2025v4.0 | 202630699349300018 |
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.0 | 202510729349300041 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v4.0 | 202440619349300914 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v4.0 | 202310699349301566 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.0 | 202240689349300049 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/043673104.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.