Funders › FL › Phelan Mcdermid Syndrome Foundation › 2024
Grants paid by Phelan Mcdermid Syndrome Foundation, tax year 2024
EIN 04-3673104 · Osprey, FL · Form 990, Schedule I · NTEE H80
In tax year 2024, Phelan Mcdermid Syndrome Foundation (EIN 04-3673104) reported 3 grants paid totaling $271,392. Dataset version 2026.09.0, built 2026-09-03.
Every grant, 2024
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2024 | Boston Children's Hospital Children's Hospital Corporation Boston, MA | A | $116,392 | paid | To support the conclusion of the second phase of the Developmental Synaptopathies Consortium's Phelan-McDermid syndrome natural history study, including Boston Children's Hospital personnel costs and subawards to Icahn Mount Sinai Medical Center and Rush University for personnel costs as well. | 202510729349300041 |
| 2024 | Seaver Autism Center Icahn School of Medicine at Mount Sinai New York, NY | A | $100,000 | paid | To fund the further development of the Phelan-McDermid syndrome Inventory for Psychiatric Symptoms (PIPS) tool, to better support individuals with Phelan McDermid syndrome and their caregivers with managing and intervening in neuropsychiatric episodes experienced by these individuals. | 202510729349300041 |
| 2024 | Northeastern University Boston, MA | A | $55,000 | paid | To support a project seeking to expand a new natural communication sampling protocol called ROSCO (Rapid Online Sample of Communication). ROSCO is designed to elicit meaningful samples of communication from individuals with Phelan McDermid syndrome via online-video platforms like Zoom in approximately 15 minutes. This study will validate the ROSCO paradigm with the Phelan McDermid syndrome population longitudinally, using repeated samples to establish reliability and sensitivity to communication change over time. | 202510729349300041 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Derived from IRS Form 990 e-file XML. Dataset version 2026.09.0, built 2026-09-03. All years for this funder.
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