Grants paid by Usher Syndrome Society Inc
EIN 26-1577154 · Needham, MA · Form 990, Schedule I
Usher Syndrome Society Inc of Needham, MA (EIN 26-1577154) reported 23 grants paid totaling $1,629,160 to 11 recipients in tax years 2019–2025, on Form 990, Schedule I. Derived from IRS e-file data, dataset version 2026.09.0, built 2026-09-03.
Grants paid
$1,629,160
23 grants
Recipients
11
distinct organizations
Tax years
2019–2025
7 filings in the corpus
By tax year
| Tax year | Grants paid | Amount paid | Approved for future |
|---|---|---|---|
| 2019 | 4 | $100,000 | — |
| 2020 | 4 | $100,000 | — |
| 2021 | 4 | $40,000 | — |
| 2022 | 2 | $225,000 | — |
| 2023 | 3 | $284,160 | — |
| 2024 | 3 | $265,000 | — |
| 2025 | 3 | $615,000 | — |
Top recipients
The 11 recipients receiving the most from Usher Syndrome Society Inc, by grants paid, out of 11 distinct recipients.
| Recipient | Match | Location | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Children's Hospital Boston Trust 04-2774441 | D | Boston, MA | 6 | $945,000 | 2025 |
| University of Oregon 52-1539724 | B | Eugene, OR | 3 | $339,160 | 2024 |
| University of Oregon 46-4727800 | A | Eugene, OR | 1 | $100,000 | 2025 |
| Massachusetts Eye & Ear | U | Boston, MA | 1 | $60,000 | 2020 |
| Massachusetts Eye and Ear Dr Eric Pierce | U | Boston, MA | 1 | $60,000 | 2019 |
| Usher Syndrome Coalition 26-1577154 | D | Maynard, MA | 4 | $50,000 | 2023 |
| Usher Syndrome Coalition 26-4560897 | A | Westford, MA | 2 | $35,000 | 2025 |
| Margaret Dyson Research Institute Cornell University | U | New York, NY | 1 | $15,000 | 2019 |
| Boston Children's Trust | U | Boston, MA | 1 | $15,000 | 2019 |
| Weil Cornell Medicine Opthalmology | U | New York, NY | 1 | $10,000 | 2020 |
| (name not stated) | U | 2 | $0 | 2021 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Every grant
All 23 grant rows this organization reported, most recent first.
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2025 | Childrens Hospital Boston Boston, MA | A | $500,000 | paid | Research Usher Syndrome | 202620899349300012 |
| 2025 | University of Oregon Eugene, OR | A | $100,000 | paid | Research Usher Syndrome | 202620899349300012 |
| 2025 | Usher Syndrome Coalition Westford, MA | A | $15,000 | paid | Research Usher Syndrome | 202620899349300012 |
| 2024 | Childrens Hospital Boston Boston, MA | A | $145,000 | paid | Research Usher Syndrome | 202521979349300512 |
| 2024 | University of Oregon Eugene, OR | B | $100,000 | paid | Research Usher Syndrome | 202521979349300512 |
| 2024 | Usher Syndrome Coalition Westford, MA | A | $20,000 | paid | Research Usher Syndrome | 202521979349300512 |
| 2023 | University of Oregon Eugene, OR | B | $139,160 | paid | RESEARCH USHER SYNDROME | 202400449349302070 |
| 2023 | Children's Hospital Boston Trust Boston, MA | D | $125,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202400449349302070 |
| 2023 | Usher Syndrome Coalition Maynard, MA | D | $20,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202400449349302070 |
| 2022 | Children's Hospital Boston Trust Boston, MA | D | $125,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202340469349303029 |
| 2022 | University of Oregon Eugene, OR | B | $100,000 | paid | RESEARCH USHER SYNDROME | 202340469349303029 |
| 2021 | Children's Hospital Boston Trust Boston, MA | D | $30,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202240529349300759 |
| 2021 | Usher Syndrome Coalition Maynard, MA | D | $10,000 | paid | RESEARCH USHER SYNDROME | 202240529349300759 |
| 2021 | (name not stated) | U | $0 | paid | USHER SYNDROME RESEARCH | 202240529349300759 |
| 2021 | (name not stated) | U | $0 | paid | RESEARCH USHER SYNDROME | 202240529349300759 |
| 2020 | Massachusetts Eye & Ear Boston, MA | U | $60,000 | paid | USHER SYNDROME RESEARCHRESEARCH USHER SYNDROME | 202120499349300827 |
| 2020 | Children's Hospital Boston Trust Boston, MA | D | $20,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202120499349300827 |
| 2020 | Weil Cornell Medicine Opthalmology New York, NY | U | $10,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202120499349300827 |
| 2020 | Usher Syndrome Coalition Maynard, MA | D | $10,000 | paid | RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH | 202120499349300827 |
| 2019 | Massachusetts Eye and Ear Dr Eric Pierce Boston, MA | U | $60,000 | paid | RESEARCH USHER SYND. | 202030599349300718 |
| 2019 | Margaret Dyson Research Institute Cornell University New York, NY | U | $15,000 | paid | RESEARCH USHER SYND. | 202030599349300718 |
| 2019 | Boston Children's Trust Boston, MA | U | $15,000 | paid | RESEARCH USHER SYND. | 202030599349300718 |
| 2019 | Usher Syndrome Coalition Maynard, MA | D | $10,000 | paid | RESEARCH USHER SYN. | 202030599349300718 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Source filings
Every figure above is traceable to one of these IRS e-file returns by its OBJECT_ID.
| Form | Tax year | Period end | Filed | Schema | IRS OBJECT_ID |
|---|---|---|---|---|---|
| 990 | 2025 | 2025-12-31 | not stated | 2025v4.0 | 202620899349300012 |
| 990 | 2024 | 2024-12-31 | not stated | 2024v5.1 | 202521979349300512 |
| 990 | 2023 | 2023-12-31 | not stated | 2023v4.0 | 202400449349302070 |
| 990 | 2022 | 2022-12-31 | not stated | 2022v4.1 | 202340469349303029 |
| 990 | 2021 | 2021-12-31 | not stated | 2021v4.1 | 202240529349300759 |
| 990 | 2020 | 2020-12-31 | not stated | 2020v4.0 | 202120499349300827 |
| 990 | 2019 | 2019-12-31 | not stated | 2019v5.0 | 202030599349300718 |
Derived from IRS Form 990 e-file XML; recipient identities from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The same rows as Parquet: manifest; as JSON: /api/funders/261577154.json.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.