Funders › NJ › Dravet Syndrome Foundation Inc › 2020
Grants paid by Dravet Syndrome Foundation Inc, tax year 2020
EIN 27-0924627 · Cherry Hill, NJ · Form 990, Schedule I · NTEE T30
In tax year 2020, Dravet Syndrome Foundation Inc (EIN 27-0924627) reported 2 grants paid totaling $160,000. Dataset version 2026.09.0, built 2026-09-03.
Every grant, 2020
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2020 | Northwestern University Evanston, IL | A | $150,000 | paid | Research Grant - Jennifer Kearney, PHD - Northwestern University. MicroRNA-mediated modification of Dravet syndrome. Dr. Kearney plans to investigate microRNAs (small RNA molecules that regulate expression of gene products) and their modulation of Nav1.1. They have identified two miRNAs that are elevated following seizures and can reduce SCN1A expression and hypothesize that this may contribute to disease progression. She will study this relationship further and evaluate this pathway as a therapeutic target for Dravet syndrome. | 202131239349301903 |
| 2020 | Camp Boggy Creek Eustis, FL | A | $10,000 | paid | Family Weekend Funding. During weekends in the spring and fall, Camp Boggy welcomes campers and their whole families to camp where parents can relax and find needed support among other families dealing with similar emotional and financial challenges. Brothers and sisters get to participate in the same fun-filled activities since every family member is considered a camper during family weekends. This grant allowed 5 families with Dravet syndrome to attend camp. | 202131239349301903 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Derived from IRS Form 990 e-file XML. Dataset version 2026.09.0, built 2026-09-03. All years for this funder.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.