Funders › NJ › Dravet Syndrome Foundation Inc › 2021
Grants paid by Dravet Syndrome Foundation Inc, tax year 2021
EIN 27-0924627 · Cherry Hill, NJ · Form 990, Schedule I · NTEE T30
In tax year 2021, Dravet Syndrome Foundation Inc (EIN 27-0924627) reported 4 grants paid totaling $260,183. Dataset version 2026.09.0, built 2026-09-03.
Every grant, 2021
| Tax year | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|
| 2021 | University of Utah Salt Lake City, UT | A | $164,671 | paid | Research Grant- Cameron Metcalf, PHD- University of Utah. Brainstem glial control of respiration in a mouse model of Dravet syndrome. Dr. Metcalf plans to investigate glial cell types in the brain of a mouse model of Dravet syndrome to better understand how inflammation and altered signaling may be impacted by seizures and the underlying genetic mutation that causes Dravet syndrome. They will test the hypothesis that by targeting these glial and inflammatory pathways therapeutically they can reduce premature mortality in this mouse. The goal of this work is to better understand causes and interventions for SUDEP (sudden unexpected death in epilepsy) in Dravet syndrome. | 202221229349301677 |
| 2021 | The Children's Hospital of Philadelphia Philadelphia, PA | A | $50,000 | paid | Postdoctoral Fellowship- Ala Somarowthu, PhD- Children's Hospital of Philadelphia. Seizure prediction and detection in a mouse model of Dravet syndrome via machine learning. Given the uncontrolled seizures in Dravet syndrome, seizure prediction or early detection would be useful for optimal intervention. Dr. Somarowthu will use advanced machine learning algorithms to develop models to predict seizures before onset and quickly detect active seizures in mouse models of Dravet syndrome. They hope developing and modeling these detection systems in a mouse model will pave the way for similar approaches in patients. | 202221229349301677 |
| 2021 | The Children's Hospital of Philadelphia Philadelphia, PA | A | $24,900 | paid | Research Grant- Ethan Goldberg, MD, PHD- Children's Hospital of Philadelphia. Optimizing a novel SCN1A delivery approach for Dravet syndrome therapy. As part of a collaboration with Dr. Eric Kremer and Dr. Moran Rubinstein, Dr. Goldberg plans to investigate a new way to deliver gene therapy to overcome the current size constraints to replacing the mutated copy of the SCN1A gene. They will test this new delivery vector in a mouse model of Dravet syndrome to determine the effectiveness of this approach to get the replacement gene to the correct cells and to decrease seizures and other symptoms related to Dravet syndrome. | 202221229349301677 |
| 2021 | The Mayo Clinic Minneapolis, MN | A | $20,612 | paid | Research Grant- Elaine Wirrell, MD- Mayo Clinic. Dravet Syndrome International Consensus Project. Dr. Wirrell will utilize a Delphi consensus method with an international panel of 18-20 experts in Dravet syndrome, including experienced neurologists and caregivers. The results of this study will be the establishment of international best practice treatment guidelines for the presentation, diagnosis, and intervention for patients with Dravet syndrome. | 202221229349301677 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are the matcher's inference and should be read as leads until the check is published on the methodology page.
Derived from IRS Form 990 e-file XML. Dataset version 2026.09.0, built 2026-09-03. All years for this funder.
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