funder-graph › Recipients
Who funds Forgotten Diseases Research Foundation
EIN 45-4470463 · Santa Clara, CA · NTEE H99
Forgotten Diseases Research Foundation of Santa Clara, CA (EIN 45-4470463) was named as a grant recipient by 3 funders in 10 grants paid totaling $404,306 in tax years 2018–2025, as reported on the funders' Forms 990-PF and 990 Schedule I. Each edge was resolved to this EIN at the match tier shown. Dataset version 2026.09.0, built 2026-09-03.
Grants received
$404,306
10 grants paid
Funders
3
distinct grantmakers
Tax years
2018–2025
as reported by funders
Funders
| Funder | State | Match | Grants | Total paid | Latest year |
|---|---|---|---|---|---|
| Johns Hopkins University 52-0595110 | MD | A | 5 | $257,696 | 2025 |
| Harry L Willett Foundation C/O Ryan Willett 27-1868389 | CO | B | 2 | $75,000 | 2019 |
| Ataxia Telangiectasia Children's Project Inc 65-0427215 | FL | A | 3 | $71,610 | 2024 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Grants
The 10 most recent grants naming this organization.
| Tax year | Funder | Recipient | Match | Amount | Type | Purpose | Source filing |
|---|---|---|---|---|---|---|---|
| 2025 | Johns Hopkins University | Forgotten Diseases Research Foundation Santa Clara, CA | A | $84,944 | paid | SUB-AWARD | 202611359349312681 |
| 2024 | Johns Hopkins University | Forgotten Diseases Research Foundation Santa Clara, CA | A | $85,733 | paid | SUB-AWARD | 202521359349314342 |
| 2024 | Ataxia Telangiectasia Children's Project Inc | Forgotten Diseases Foundation Santa Clara, CA | A | $7,450 | paid | Medical Research | 202531059349302408 |
| 2023 | Johns Hopkins University | Forgotten Diseases Research Foundation Santa Clara, CA | A | $34,732 | paid | SUB-AWARD | 202421349349308667 |
| 2022 | Ataxia Telangiectasia Children's Project Inc | Forgotten Diseases Research Foundation Santa Clara, CA | A | $34,210 | paid | Medical Research | 202340189349301254 |
| 2022 | Johns Hopkins University | Forgotten Diseases Research Foundation Santa Clara, CA | A | $18,187 | paid | SUB-AWARD | 202321289349301232 |
| 2021 | Johns Hopkins University | Forgotten Diseases Research Foundation Santa Clara, CA | A | $34,100 | paid | SUB-AWARD | 202221319349305807 |
| 2021 | Ataxia Telangiectasia Children's Project Inc | Forgotten Diseases Research Santa Clara, CA | A | $29,950 | paid | Medical Research | 202231029349301618 |
| 2019 | Harry L Willett Foundation C/O Ryan Willett | Forgotten Diseases Research Foundation Santa Clara, CA | B | $40,000 | paid | GENERAL PROGRAM SUPPORT | 202020729349100612 |
| 2018 | Harry L Willett Foundation C/O Ryan Willett | Forgotten Diseases Research Foundation Santa Clara, CA | B | $35,000 | paid | GENERAL PROGRAM SUPPORT | 201910749349100606 |
Match tier: A Reported EIN · B Exact name and place · C Strong name match · D Probable name match · U Unresolved. Tiers C and D are inferred, not reported; see how matching works.
Recipient matching for this dataset version has not yet completed its independent precision check. Tier A rows carry the EIN the filer reported; tiers B–D are inferred and should be read as leads until the check is published on the methodology page.
Derived from IRS Form 990-PF and Form 990 Schedule I e-file XML filed by the funders shown; this organization's identity from the IRS Exempt Organizations Business Master File. Dataset version 2026.09.0, built 2026-09-03. The rows as Parquet: manifest.
The same organization elsewhere in the program: exempt status and filing health · federal awards · grant guidance · open opportunities.
This is informational only, derived from public data on the dates shown. It is not an eligibility determination, and not legal, tax, or accounting advice. Verify against the official source before relying on it.